Search results

  1. Andy

    UK Government ME/CFS Delivery Plan consultation

    MEAction UK's response, https://www.meaction.net/2023/10/03/meaction-uks-response-to-dhsc-my-full-reality-the-interim-delivery-plan-on-me-cfs/
  2. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,225 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  3. Andy

    United Kingdom: ME Research UK (MERUK) News

    Ongoing project: Exploring patterns of antibodies in moderate and severe ME/CFS "One possible route to the development of such a tool is to look at the pattern of antibodies produced by the body as part of the immune response, and the central idea behind Dr Lacerda and Prof. Cambridge’s study...
  4. Andy

    Patient registries

    We obviously have all the responses from our participants to our primary questionnaire, and there will be a secondary questionnaire that will explore additional areas of interest, but we have never called our cohort a registry. There is also The Netherlands ME/CFS Cohort and Biobank (NMCB)...
  5. Andy

    Long Covid in the media and social media 2023

    Long Covid SOS, one of the Long Covid charities represented at the UK Covid Inquiry, posted on Twitter. "Today we found out that @BorisJohnson scrawled 'BOLLOCKS’ across a @DHSCgovuk document about #LongCovid He admitted in his witness statement that he didn’t believe #LongCovid ‘truly existed’...
  6. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,199 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  7. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,149 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  8. Andy

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    "Antibiotic use can increase chances of MCAS flares. MCAS flares can also lead to polyreactivity and loss of oral tolerance. Planning for negative side-effects is an key part of the @remissionbiome safety plan." https://x.com/chydorina/status/1708585382013792320?s=20 First do no harm, unless...
  9. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 25th Sept. Facebook: https://www.facebook.com/sci4me/posts/pfbid02c5vVD3SM84LHEi7CnLrSNSHLF7kmtW9VRJ164N5bLEDzUBRVmm3v6c1WEb9BbKLUl Mastodon: https://med-mastodon.com/@s4me/111164552103999065
  10. Andy

    United Kingdom: Action for ME (AfME) news

    First Clare Francis Research fellowship awarded "Audrey’s research project will try to identify and characterise factors in the blood of patients that may be responsible for disturbing their mitochondria. Equally important, if Audrey can show that such a factor exists, this could provide a...
  11. Andy

    Australia: News from Emerge Australia

    "While estimates of how many people have ME/CFS vary, it is thought that around 0.4-1% of the population is affected. This means that up to 250,000 Australians have the condition." https://www.emerge.org.au/what-is-mecfs/ Up to 1%??? Do we know that Australians are particularly likely to...
  12. Andy

    Cardiac Vagal Nerve Activity Increases During Exercise to Enhance Coronary Blood Flow, 2023, Shanks et al

    In sheep. BACKGROUND: The phrase complete vagal withdrawal is often used when discussing autonomic control of the heart during exercise. However, more recent studies have challenged this assumption. We hypothesized that cardiac vagal activity increases during exercise and maintains cardiac...
  13. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    8,108 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  14. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    No, we don't have such a thread. If I started one I think I would be inclined to put it here, https://www.s4me.info/forums/psychosomatic-news-me-cfs-and-long-covid.27/
  15. Andy

    Functional Neurological Disorder (FND) - articles, social media and discussion

    There seems to be yet another themed edition of a journal centered around FND. Rather than flood the forum with them, the table of contents can be found here, https://www.sciencedirect.com/journal/neurologic-clinics/vol/41/issue/4 where you can find the following delights: Lessons from a...
  16. Andy

    Opinion Lessons from a Neurologist After 25 Years of Functional Neurological Disorder Subspeciality Practice 2023 Stone

    Abstract The idea that a neurologist would do an 'FND clinic' or that functional neurological disorder (FND) could be a subspecialty of neurology would have been outlandish even 20 years ago but has become a reality in many places around the world. In this personal review, I reflect on 25 years...
  17. Andy

    Review Functional Movement Disorder: Assessment and Treatment 2023 Serranová et al

    Abstract Functional movement disorder (FMD) is a common, potentially reversible source of disability in neurology. Over the last two decades, there have been major advances in our understanding of the clinical picture, diagnosis, and management of this condition. Motor presentation is...
  18. Andy

    Longitudinal associations between higher self-reported energy, gait speed and cognition in older adults with fatigue, 2023, Ehrenkranz et al

    Background Older adults reporting higher energy levels have better physical function. It is not known if these associations persist among older adults reporting fatigue or if higher energy is associated with cognitive function. We examined longitudinal associations between self-reported energy...
  19. Andy

    Review The Long Road of Long COVID: Specific Considerations for the Allergist and Immunologist, 2023, Bellanti et al

    Long COVID (coronavirus disease 2019) syndrome, also known as post-acute sequelae of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection, is a new disorder that can develop after an acute infection with the SARS-CoV-2 virus. The condition is characterized by multiorgan system...
  20. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 25th Sept. Facebook: https://www.facebook.com/sci4me/posts/pfbid031P4zPyjqEPapsZqT1fBLDYL7u4KbNDDssrem5zCzfjbX8ajCUkEKbUwZ92k2uTmAl Mastodon: https://med-mastodon.com/@s4me/111158986455488941
Back
Top