Search results

Monthly News in Brief post on Reddit, https://www.reddit.com/r/cfs/comments/16wvht6/news_in_brief_posts_for_september_2023_covering/

Background Treating functional movement disorder (FMD) with motor retraining is effective but resource intensive. Objectives Identify patient, disease, and program variables associated with favorable treatment outcomes. Methods Retrospective review of the 1 week intensive outpatient FMD...

Background Functional movement disorders (FMD) are associated with a high prevalence of psychiatric comorbidities. Objective To assess the frequency of obsessive-compulsive symptoms (OCS) in FMD. Methods A total of 167 consecutive patients with clinically definite FMD (mean age = 44.4 years...

"Introduction Fatigue is one of the most common symptoms experienced by people with a range of clinical conditions, for example, post-stroke fatigue affects up to 50% of stroke survivors1 . Fatigue has also been estimated to affect up to 17% of the general population2 . In the clinical...

Abstract Trait fatigues reflects tiredness that persists throughout a prolonged period, whereas state fatigue is defined to be short term after “intense and/or prolonged effort”. We investigated the impact of prolonged sustained attention (using the SART task) on both trait and state fatigue...

Wow, what a coincidence that is all in progress at the same time as the open letter and petition! Great work by Trish, Hutan and all to force this out of them, although I shall remain sceptical of their "next few weeks" timescale until I actually see them publish something.

Start of merged preprint thread Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) is an acquired disease with significant morbidity that affects both children and adults. Effective tools to assess functional capacity (FC) are severely lacking which has significant consequences for...

Full title: Exploring Comorbidities in Adolescent and Young Adults with Hypermobile Ehlers–Danlos Syndrome with and without a Surgical History: A Preliminary Investigation Abstract Ehlers–Danlos Syndrome (EDS) is a rare disease affecting the skin, joints, vasculature, and internal organs...

And while I'm getting things about the consultation off of my chest; if they wanted to limit the number of responses that they received from pwME then they possibly couldn't have picked a better format - it is an atrocious document. The way I, and the rest of the team, approach DecodeME...

When I have had the energy and time I have tried, on multiple occasions, to wade my way through the interim delivery plan, understand the content, and then formulate my response and I have really struggled to do so. Having read through, in particular, the responses from the ME Association and...

ME Research UK's response to the consultation, https://www.meresearch.org.uk/our-response-to-the-dhsc-interim-delivery-plan-on-me-cfs/

It looks like us noticing has been itself noticed as the page now reads, "Expanding the diagnostic criteria for FND: can nociplastic pain, irritable bowel, ‘post-concussion syndrome’, persistent fatigue all have the same pathophysiological basis? Should the DSM/ICD criteria be updated?". I guess...

7,719 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Highlights Chronic stress is a positive contributor to medically-unexplained symptoms (MUS) Low frequency heart rate variability (HRV) is a positive contributor to MUS Cortisol awakening response is a positive contributor to MUS Chronic stress mediates the relationship between HRV and MUS...

Now published, open access, https://www.mdpi.com/2218-1989/13/9/984

7,497 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

The molecular immune signature in ME/CFS as stratification tool for future personalized treatment Projectomschrijving ME/CFS is a serious chronic disease for which there is no proper treatment. In this project, blood from the Netherlands ME/CFS Cohort and Biobank (NMCB) consortium will be...

Explaining skeletal muscle-related symptoms in patients with ME/CFS: from skeletal muscle to exercise immunology (MuscleME) Projectomschrijving The MuscleME project aims to better understand the pathophysiology of muscle pain, fatigue and worsening of symptoms after exercise (post-exertional...

Brain changes in ME/CFS: Focus on the stress and immune system Projectomschrijving Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) has various neurological symptoms, such as mood swings, lack of energy and problems with sleep and concentration. Despite initial evidence of brain...

Converging neurobiological and immune pathways in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and post-infectious fatigue syndromes (PIFS) Projectomschrijving Patients with myalgic encephalomyelitis (ME) and/or chronic fatigue syndrome (CFS), or ME/CFS, have similar symptoms to...