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No, open access at the link you give, https://www.nature.com/articles/s41598-023-35991-y

Now published. Abstract As six patient partners in Canada, we aim to contribute to learning and to provide an opportunity to reflect on patient engagement (PE) in research and healthcare environments. Patient engagement refers to “meaningful and active collaboration in governance, priority...

Background Previous studies have found that adolescents with a chronically ill parent may experience more internalizing problems. It is less clear if this association is sex-related, and whether it is specific for functional somatic symptoms (FSSs) or concerns other internalizing or...

Background The condition known as chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is poorly understood. Simplified medical models tend to neglect the complexity of illness, contributing to a terrain of uncertainty, dilemmas and predicaments. However, despite pessimistic pictures...

Fine ideas, the standard challenge though will be finding volunteers who have the capacity to work on it. I don't, mainly due to my involvement in DecodeME (if you haven't yet take part here), hopefully there might be some who can take these ideas forward.

Published papers thread for w/c 5th June. Facebook: https://www.facebook.com/sci4me/posts/pfbid0K2XVTAfVzZXvgD3tDVjFqcTCf7Lcmve595JvTMREPeY6kz9rTKf6dDEepeTTbgNVl Mastodon: https://med-mastodon.com/@s4me/110530112425824707

Situations Vacant: Fundraising Manager Deadline for applications: Friday 16 June 2023 at 5pm. https://meassociation.org.uk/2023/06/situations-vacant-fundraising-manager/

Abstract Depression is often framed as a disease or dysfunctional syndrome, yet this framing has unintended negative consequences including increased stigma. Here, we consider an alternative messaging framework – that depression serves an adaptive function. We describe the historical...

I said So I don't agree, obviously they are open to individuals and specific organisations, but their positioning in general is to be, and be seen to be, as outsiders, which I don't think is as useful overall as it used to be.

News in Brief posts for w/c 5th June Facebook: https://www.facebook.com/sci4me/posts/pfbid0EKq19sTA21GyF4foBW26Yxxpghhq8sSBcWLa6uGhjnhHBWU4VozZxKH8J1PBEFBcl Mastodon: https://med-mastodon.com/@s4me/110525278639243249

For all the time I've been aware of them IiME have seemed to deliberately set themselves apart from not only the other ME/CFS organisations in the UK but also the whole research system in general. While I can understand why they may have done that in that past, I think that enough has changed to...

Webinar: Long Covid: What Needs To Happen Next, 5th and 6th July Click thumbnail for more detail or see tweet below.

Response to this paper from Kachaner et al, https://onlinelibrary.wiley.com/doi/10.1111/ene.15911 Paywalled, so I'm unable to provide an abstract/preview.

"Introduction In the 1960s, Aaron Beck developed cognitive behavior therapy (CBT) or cognitive therapy. Since then, it has been extensively researched and found to be effective in a large number of outcome studies for some psychiatric disorders, including depression, anxiety disorders, eating...

Continuing Education Activity In the 1960s, Aaron Beck developed cognitive behavior therapy (CBT) or cognitive therapy. Since then, it has been extensively researched and found to be effective in a large number of outcome studies for psychiatric disorders including depression, anxiety disorders...

Neúnavní joins the World ME Alliance to represent the Czech Republic https://worldmealliance.org/2023/06/neunavni-joins-the-world-me-alliance-to-represent-the-czech-republic/ Also posted here, News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

Neúnavní joins the World ME Alliance to represent the Czech Republic "We are thrilled to announce the newest member of the World ME Alliance: Neúnavní. This Czech charity is dedicated to supporting individuals living with Myalgic Encephalomyelitis (ME) in the Czech Republic. Neunavní has been...

Objective: To analyze the potential impact of sociodemographic, clinical and biological factors on the long-term cognitive outcome of patients who survived moderate and severe forms of COVID-19. Methods: We assessed 710 adult participants (Mean age = 55 ± 14; 48.3% were female) 6 to 11 months...

Now published Outpatient treatment of COVID-19 and incidence of post-COVID-19 condition over 10 months (COVID-OUT): a multicentre, randomised, quadruple-blind, parallel-group, phase 3 trial Background Post-COVID-19 condition (also known as long COVID) is an emerging chronic illness potentially...

Of course pacing allows more IF capacity improves but that isn't what is claimed here. "Consequently, perceived energy levels will increase over time and fatigue levels decrease, allowing patients to progressively perform higher levels of physical and cognitive activities."