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  1. Andy

    The relevance of pacing strategies in managing symptoms of post-COVID-19 syndrome 2023, Ghali et al

    The description of pacing starts alright but then veers off into graded activity territory. "They consist of adapting and adjusting the different patients’ activities in terms of physical, cognitive and emotional effort within the limits imposed by the illness [28]. Pacing is very similar to...
  2. Andy

    Impact of fatigue as the primary determinant of functional limitations among patients with post-COVD-19 syndrome, 2023, Walker et al

    They actually cover this point somewhat "This study enforces the recommendation for the use of a consistent set of outcome measures in studies in COVID-19. One such list of recommended variables is the International Consortium for Health Outcomes Measurement (ICHOM) set of patient-centred...
  3. Andy

    Impact of fatigue as the primary determinant of functional limitations among patients with post-COVD-19 syndrome, 2023, Walker et al

    From my quick scan of the references, this paper was the closest that the authors came to referencing anything remotely like ME/CFS, and it's the latest garbage from the COFFI crew, Jama - Prevalence and Characteristics with Post-COVID-19 Condition Among Non-hospitalized Adolescents... -...
  4. Andy

    Impact of fatigue as the primary determinant of functional limitations among patients with post-COVD-19 syndrome, 2023, Walker et al

    No mention at all of PEM/PESE or of ME/CFS in the paper that I could find. The bolded sentence seems strangely worded to me. "This study has implications for the targeting of limited resources to effectively address functional limitations from PCS. Of particular concern is the large proportion...
  5. Andy

    A natural experiment on the effect of herpes zoster vaccination on dementia, 2025, Eyting et al

    Does shingles vaccination cut dementia risk? Large study hints at a link "Vaccination against shingles might also prevent dementia, such as that caused by Alzheimer’s disease, according to a study of health records from around 300,000 people in Wales. The analysis found that getting the vaccine...
  6. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    To repeat what has been said already, for the most accurate results from any meta analysis then the inclusion criteria that the data is based on needs to be the same. DecodeME has used the IOM/NAM and CCC, and there is nothing there to confirm what criteria the Lifeline's cohort will use, so...
  7. Andy

    Preprint Altered Lipid, Energy Metabolism and Oxidative Stress Are Common Features in a Range of Chronic Conditions, 2023, Morten et al

    Review article. Authors: Karl Jonathan MORTEN University of Oxford Leah Davis University of Oxford Tiffany A. Lodge University of Oxford James Strong University of Oxford José Andrés Espejo-Oltra Catholic University of Valencia Saint Vincent Martyr Pawel Zalewski Medical University of...
  8. Andy

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Trial By Error: A Letter Regarding Inflated Prevalence Rates for Functional Neurological Disorder I have posted previously about how papers on functional neurological disorder (FND) have routinely mis-cited a seminal 2010 study in asserting that the diagnosis is the second-most-common...
  9. Andy

    Major Depressive Disorder and CFS Show Characteristic Heart Rate Variability Profiles Reflecting Autonomic Dysregulations, 2023

    "MDD and CFS were diagnosed using the criteria of the Diagnostic and Statistical Manual of Mental Disorders, 5th edition (DSM5) [8], and with the 1994 Center for Disease Control clinical criteria [11], respectively"
  10. Andy

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    "Dr Katrina Pears attended the 2-day research conference for the ME Association and reports on a selection of the presentations. The conference programme can be accessed here. It included 28 short presentations and a poster session with 25 posters (that included Dr Karl Morten speaking about his...
  11. Andy

    Cot Death Genetic Link: Kathleen Folbigg: Mother who served 20 years for killing her four babies pardoned

    From 2001, about another similar case. "Sally Clark was sent to prison two years ago, condemned to life inside for murdering her two babies because - among other evidence - there was only 'one chance in 73 million' of the babies, born a year apart, both dying of natural causes. But the...
  12. Andy

    Review Effects of acceptance and commitment therapy on fatigue for patients with cancer and other chronic health conditions: 2023 Maunick et al

    "Direction for future research The limitations of the current review provide important insights into directions for future research. It is recommended that future trials expand upon the current findings through examining other chronic health condition populations experiencing significant...
  13. Andy

    Review Effects of acceptance and commitment therapy on fatigue for patients with cancer and other chronic health conditions: 2023 Maunick et al

    Abstract Objective Fatigue is significantly more prevalent in the chronically ill compared to healthy individuals. Fatigue is one of the most reported and debilitating symptoms in individuals with chronic health conditions. Despite this, there is limited evidence examining the efficacy of...
  14. Andy

    The cost-effectiveness of an indicated blended care intervention [...] in patients with moderate persistent somatic symptoms 2023 Toonders et al

    "Persistent Somatic Symptoms (PSS) are defined as pain, fatigue, and/or dizziness or a combination of these which last at least several weeks and for which no sufficient explanation can be found after proper medical examination [[1], [2], [3]]. PSS are very common, especially in primary care...
  15. Andy

    The cost-effectiveness of an indicated blended care intervention [...] in patients with moderate persistent somatic symptoms 2023 Toonders et al

    Full title: The cost-effectiveness of an indicated blended care intervention in primary care compared to usual care in patients with moderate persistent somatic symptoms Highlights This is the first cost-effectiveness study on treating patients with moderate PSS. Overall, the intervention is...
  16. Andy

    Effectiveness of exercise training on the dyspnoea of individuals with long COVID: A randomised controlled multicentre trial 2023 Romanet et al

    Highlights After COVID-19 infection, symptoms such as dyspnoea may persist. In respiratory diseases, dyspnoea reduces health-related quality of life. Physiotherapy and rehabilitation are both currently recommended in this context. A 3-month course of exercise training rehabilitation (ETR)...
  17. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 29th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid0FRGweWCJqxVMottRGrjjm6VdZKhb5o9yp3JDGGuS1oKo2EPthDpmVZyAbDz2GWL4l Mastodon: https://med-mastodon.com/@s4me/110490737029157449
  18. Andy

    Protocol MODIFI: protocol for randomised feasibility study of eye-movement desensitisation and reprocessing therapy (EMDR) for [FND] 2023 Cope, Edwards et al

    From Wikipedia, "Eye movement desensitization and reprocessing (EMDR) is a form of psychotherapy devised by Francine Shapiro in the 1980s that was originally designed to alleviate the distress associated with traumatic memories such as post-traumatic stress disorder (PTSD). EMDR involves...
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