From Natalia Hodgins on Twitter.
"A heartfelt thank you to @SenatorJordon and @MariaVamvakinou for re-establishing the Parliamentary Friends of ME/CFS in Australia. A launch event will be held on 13 June, 11am-12pm AEST at Parliament House. All are welcome to attend via live-stream...
The sub-typing is simply by onset,
"Five different ME/CFS onset types were examined in the self-reported data: those with ME/CFS onset (i) after glandular fever (infectious mononucleosis); (ii) after COVID-19 infection; (iii) after other infections; (iv) without an identified infectious onset...
Background and purpose
The COVID-19 pandemic has been associated amongst others with a sharp increase in adolescents and young adults presenting acutely with functional tics. Initial reports have suggested clinically relevant differences between functional tics and neurodevelopmental tics seen...
Full title: Socioemotional and behavioural difficulties in children with chronic physical conditions: analysis of the Longitudinal Study of Australian Children
Objectives
To examine the prevalence of socioemotional and behavioural difficulties (SEBDs) in children with chronic physical...
[Rats were tortured to simulate 'CFS', then were given transcutaneous electrical acupoint stimulation, improved "learning and memory ability of CFS rats" was then claimed]
Objective: To observe the effect of transcutaneous electrical acupoint stimulation (TEAS) on the histomorphological...
From Anna, the organiser, on Twitter.
"Morning! A fundraising update for you. Still 4 charities to contact and add to the total. Speechless actually. £23,900!"
Why would the forum need to be involved? Obviously we have a platform where discussions can take place but I don't understand why we would need to extend an invitation.
BBC News: Record numbers not working due to ill health
"The number of people not working in the UK due to long-term sickness has risen to a new record, official figures show.
The Office for National Statistics said more than two and a half million were not working because of health problems...
Continue funding ME/CFS research
"Berlin – Research into the disease myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) continues to be the focus of science and politics. On the one hand, it is important to track down the causes, not least in order to be able to develop effective...
Highlights
Pathogenesis and salugenesis are the first and second stages of the two-stage problem of disease production and health recovery.
Salugenesis, the healing cycle, the integrated stress response (ISR), and the cell danger response (CDR) each describe different aspects of the same...
Well, taking a positive view, perhaps it indicates a willingness to adopt the same criteria as we have used; I personally wouldn't call that collaboration, in the sense of directly working together, but it might be a language difference thing where information sharing is seen as being...
Cross-posted with Arvo's post immediately above.
In my opinion, way too much is being made of the word collaboration in this situation.
As we (DecodeME) are a project that is as open as possible, we are, and always have been, willing to share with whoever is interested:
our selection criteria...
I'm sorry, I don't follow why I would want this document?
Mod note: this response was prompted by a suggestion that S4ME as a whole responds to the issue (since deleted due to some confusion about how to contact S4ME administration)
If you would like the social media accounts to help in this...
Mitochondria play a key role in both health and disease. Their function is not limited to energy production but serves multiple mechanisms varying from iron and calcium homeostasis to the production of hormones and neurotransmitters, such as melatonin. They enable and influence communication at...
Contested illnesses, such as fibromyalgia, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and chronic Lyme disease (CLD), are surrounded by polemic debates regarding their etiology, symptomology, treatment, and even their existence. People who suffer from these contested illnesses...
The paper says "All cases met the 1994 CDC Fukuda [28] and/or 2003 Canadian consensus criteria for ME/CFS" but also "All patients who were selected met the 1994 Fukuda definition for ME/CFS.", so it's not particularly clear.
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