Search results

  1. Andy

    News from Australia

    From Natalia Hodgins on Twitter. "A heartfelt thank you to @SenatorJordon and @MariaVamvakinou for re-establishing the Parliamentary Friends of ME/CFS in Australia. A launch event will be held on 13 June, 11am-12pm AEST at Parliament House. All are welcome to attend via live-stream...
  2. Andy

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    The sub-typing is simply by onset, "Five different ME/CFS onset types were examined in the self-reported data: those with ME/CFS onset (i) after glandular fever (infectious mononucleosis); (ii) after COVID-19 infection; (iii) after other infections; (iv) without an identified infectious onset...
  3. Andy

    New-onset functional tics during the COVID-19 pandemic: clinical characteristics of 105 cases from a single centre 2023 Cavanna et al

    Background and purpose The COVID-19 pandemic has been associated amongst others with a sharp increase in adolescents and young adults presenting acutely with functional tics. Initial reports have suggested clinically relevant differences between functional tics and neurodevelopmental tics seen...
  4. Andy

    Socioemotional and behavioural difficulties in children with chronic physical conditions: analysis of the Longitudinal Study.. 2023 David-Wilathgamuwa

    Full title: Socioemotional and behavioural difficulties in children with chronic physical conditions: analysis of the Longitudinal Study of Australian Children Objectives To examine the prevalence of socioemotional and behavioural difficulties (SEBDs) in children with chronic physical...
  5. Andy

    Effect of transcutaneous electrical acupoint stimulation on learning and memory ability of chronic fatigue syndrome rats and its mechanisms 2023 Zhong

    [Rats were tortured to simulate 'CFS', then were given transcutaneous electrical acupoint stimulation, improved "learning and memory ability of CFS rats" was then claimed] Objective: To observe the effect of transcutaneous electrical acupoint stimulation (TEAS) on the histomorphological...
  6. Andy

    Blue Sunday: The Tea Party for M.E. 2023

    From Anna, the organiser, on Twitter. "Morning! A fundraising update for you. Still 4 charities to contact and add to the total. Speechless actually. £23,900!"
  7. Andy

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    Why would the forum need to be involved? Obviously we have a platform where discussions can take place but I don't understand why we would need to extend an invitation.
  8. Andy

    Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

    BBC News: Record numbers not working due to ill health "The number of people not working in the UK due to long-term sickness has risen to a new record, official figures show. The Office for National Statistics said more than two and a half million were not working because of health problems...
  9. Andy

    International ME/CFS Conference of the Charité Fatigue Center on 11./12. May 2023 in Berlin, supported by the ME/CFS Research Foundation

    Continue funding ME/CFS research "Berlin – Research into the disease myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) continues to be the focus of science and politics. On the one hand, it is important to track down the causes, not least in order to be able to develop effective...
  10. Andy

    Review Mitochondrial and metabolic features of salugenesis and the healing cycle, 2023, Naviaux

    Highlights Pathogenesis and salugenesis are the first and second stages of the two-stage problem of disease production and health recovery. Salugenesis, the healing cycle, the integrated stress response (ISR), and the cell danger response (CDR) each describe different aspects of the same...
  11. Andy

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    No, as to date I don't believe it has ever been published.
  12. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Well, taking a positive view, perhaps it indicates a willingness to adopt the same criteria as we have used; I personally wouldn't call that collaboration, in the sense of directly working together, but it might be a language difference thing where information sharing is seen as being...
  13. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Cross-posted with Arvo's post immediately above. In my opinion, way too much is being made of the word collaboration in this situation. As we (DecodeME) are a project that is as open as possible, we are, and always have been, willing to share with whoever is interested: our selection criteria...
  14. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    I'm sorry, I don't follow why I would want this document? Mod note: this response was prompted by a suggestion that S4ME as a whole responds to the issue (since deleted due to some confusion about how to contact S4ME administration) If you would like the social media accounts to help in this...
  15. Andy

    Review Mitochondria: It is all about energy 2023 Casanova et al

    Mitochondria play a key role in both health and disease. Their function is not limited to energy production but serves multiple mechanisms varying from iron and calcium homeostasis to the production of hormones and neurotransmitters, such as melatonin. They enable and influence communication at...
  16. Andy

    Contesting misrecognition online: Experiences of epistemic in/justice by vloggers with contested illnesses 2023 Groenevelt and de Boer

    Contested illnesses, such as fibromyalgia, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and chronic Lyme disease (CLD), are surrounded by polemic debates regarding their etiology, symptomology, treatment, and even their existence. People who suffer from these contested illnesses...
  17. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 8th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid01Peb1H9cpaq2yPdEqLRu979BLCuE1yewzwG1WTwCBb5gMCAsUyhvkXnvkEQKXQZal Mastodon: https://med-mastodon.com/@s4me/110371768575940854
  18. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 8th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid037wUk2UgLzKXJN49sVTQWjywduzoJx4qGPWP5weYaR5TPmRGiH4vFQ2xRd8kTUqJul Mastodon: https://med-mastodon.com/@s4me/110366866344510757
  19. Andy

    Proteomics and cytokine analyses distinguish myalgic encephalomyelitis/chronic fatigue syndrome cases from controls, 2023, Giloteaux et al

    The paper says "All cases met the 1994 CDC Fukuda [28] and/or 2003 Canadian consensus criteria for ME/CFS" but also "All patients who were selected met the 1994 Fukuda definition for ME/CFS.", so it's not particularly clear.
  20. Andy

    Comorbidities, biomarkers and cause specific mortality in patients with irritable bowel syndrome: A phenome-wide association study 2023 Seeling et al

    "The risk of chronic fatigue syndrome (CFS) was significantly higher compared to controls (OR = 4.4 [95% CI = 3.6–5.3]"
Back
Top Bottom