Search results

EnergiseME: Evaluation of the link between auto-immunity and derangements in immune cell metabolism and function in ME/CFS Projectomschrijving Which alterations in the metabolism of immune cells could be the cause of ME/CFS? To find out, researchers will map the metabolism of immune cells from...

Autoimmunity as a cause of ME/CFS symptoms (AutonoME) Projectomschrijving ME/CFS is a debilitating disease with an unknown cause. It is possible that autoimmunity plays a role in ME/CFS; this means that people produce antibodies directed against their own body, which can thus cause a wide...

Sub-studies As a broad national coalition of research institutes, patient organisations and clinical centres, the NMCB consortium will jointly conduct research on highly relevant research themes. The research projects test innovative hypotheses that can lead to a thorough understanding of...

This project is one of several that have been discussed in this thread, The Netherlands - €28.5 million ME/CFS research program - funding awards announced April 2023 I thought it was worth having its own thread primarily due to the sub-projects that are also attached to it. Project overview...

Women who don’t menstruate — including postmenopausal women and those on contraceptives — were several times more likely to experience unexpected vaginal bleeding after COVID-19 vaccination than before the vaccines were offered, a study1 finds. When COVID-19 jabs were rolled out globally, many...

Physio for ME's response, https://www.physiosforme.com/post/physios-for-me-respond-to-dhsc-interim-plan

Link to online version, https://www.researchsquare.com/article/rs-3218228/v2

"Post exertional malaise complaints were common in QFS patients; all (98.9%) except four patients reported at least mild complaints at one of the five post exertional malaise domains. Almost all patients reported at least mild complaints (95.6 – 97.8%) on four of the post exertional malaise...

"Post exertional malaise (PEM) in the previous days was assessed using the five items for post exertional neuroimmune exhaustion [18]. Patients scored items on a 5-point Likert scale ranging from 1 (‘yes, that is true’) to 5 (‘no, that is not true’). " Which would mean they asked about 1...

Background Characterizing Post-Acute Sequelae of COVID (SARS-CoV-2 Infection), or PASC has been challenging due to the multitude of sub-phenotypes, temporal attributes, and definitions. Scalable characterization of PASC sub-phenotypes can enhance screening capacities, disease management, and...

7,297 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

From an NIH MECFS Information List email. "Registration now open for ME/CFS researchers: Symposium For Promoting The Advancement Of Research Knowledge In ME/CFS Registration is open for the upcoming Symposium For Promoting The Advancement Of Research Knowledge In ME/CFS (SPARK ME) on December...

A detailed view of the UK's rare disease research has been captured for the first time. A newly-published report reveals over £1.1 billion has been invested by Government and charities over a five-year-period. The report has been published by The NIHR, in collaboration with: The Medical...

The ME Association's response, https://meassociation.org.uk/2023/09/the-me-association-responds-to-government-consultation-idp-me-cfs/

People on Twitter are making good use of the community note option. Click image below to view.

Published papers thread for w/c 18th Sept. Facebook: https://www.facebook.com/sci4me/posts/pfbid0Foj7XBSmchUcWoBWruYRPNLFBUX5R2fUck6s38tnAWBsrAGtNoyawjgGW3Ubn2CHl Mastodon: https://med-mastodon.com/@s4me/111125047680298144

7,041 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

And to the oil industry and their work to undermine and downplay the effects of fossil fuels on the climate.

New social media posts. Facebook: https://www.facebook.com/sci4me/posts/pfbid029SvUtKAbEqsPbrRpR9fshEM3C3nW8XnZM9ywm3qtd9cHAYnPiDncgxhmp5ADUBVul Mastodon: https://med-mastodon.com/@s4me/111120012891227181

6,910 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review