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News in Brief post for w/c 18th Sept. Facebook: https://www.facebook.com/sci4me/posts/pfbid024MWWQ6cDzzcgu7HJAyQKLWdHjx6mA2o3Hj2it7GWrWj9cTCVLkocgTK5heiC7wcWl Mastodon: https://med-mastodon.com/@s4me/111119796314249951

Interesting, at least to me, how few UK based folk have signed on to this. Aarhus University Hospital (where Fink is based) website has an 'announcement' about this. Archive link...

Full title: The importance of patient-partnered research in addressing long COVID: Takeaways for biomedical research study design from the RECOVER Initiative’s Mechanistic Pathways taskforce Abstract The NIH-funded RECOVER study is collecting clinical data on patients who experience a...

Background Some patients infected with severe acute respiratory syndrome coronavirus-2 (SARS-CoV-2) go on to experience post-COVID-19 condition or long COVID. Preliminary findings have given rise to the theory that long COVID may be due in part to a deranged immune response. In this study, we...

6,764 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

Yup, not our words. They presumably thought "Its core symptoms include post-exertional malaise (an excessive worsening of symptoms following minor physical or mental exertion), pain, fatigue, unrefreshing sleep and cognitive impairment." a bit too challenging for their readers.

Twitter post from AfME promoting the petition 6,619 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review Edit: And Facebook post...

They don't detail how they assessed for "chronic fatigue syndrome".

Objective: Our aim in this study was to evaluate the level of central sensitization (CS) in patients having familial Mediterranean fever (FMF), axial spondyloarthritis (axSpA), and both diseases (axSpA/FMF). Methods: This study included 30 FMF, 30 axSpA, 30 axSpA/FMF patients, and 30 healthy...

World's largest study of ME hopes to tackle 'stigma' of chronic fatigue, https://news.stv.tv/scotland/worlds-largest-study-of-me-hopes-to-tackle-stigma-of-chronic-fatigue [Please note that we aren't responsible for the headlines chosen by any publication. In fact this one ignores our request...

Major study hopes to tackle ME stigma "Researchers behind the world’s largest study of chronic fatigue syndrome, also known as ME, are hoping to tackle the “stigma” associated with the disease as well as working towards potential treatment. It comes as the team behind DecodeME urged more...

Trial By Error: An Interview with Yale’s Akiko Iwasaki "In this comment in The Lancet Infectious Diseases, published earlier this year, she and Mt Sinai’s David Putrino outlined four hypotheses about the possible root causes of long Covid. We spoke earlier today about these possible root...

You are.

We have, and while I acknowledge that there is a certain amount of logic to the argument, it is not possible for a number of different reasons that I have previously explained. The entry criteria was adjusted after we recognised that certain exclusions, while being sensible to apply in a...

Hopefully before Aug 2024, which is when our funding ends.

Objective Fibromyalgia (FM) is characterized by pervasive pain-related symptomatology and high levels of negative affect. Mind-body treatments such as cognitive-behavioral therapy (CBT) appear to foster improvement in FM via reductions in pain-related catastrophizing, a set of negative...

6,563 signatures at time of posting. https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review

On Twitter, "MEAction UK are delighted to announce that the @JNNP_BMJ are publishing an edited version of our rapid response. Follow the link for more info: https://www.meaction.net/2023/09/19/jnnp-to-publish-edited-rapid-response-by-meaction-uk/"

Introduction This study aimed to provide a preliminary assessment of objective and subjective neurocognitive functioning in individuals with functional motor symptoms (FMS) and/or functional seizures (FS). We tested the hypotheses that the FMS/FS group would display poorer objective attentional...