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  1. Sean

    British Medical Association: "Known unknowns, and as yet medically unexplained diseases" by Dr David Strain

    Good article. :thumbsup: "It’s the first global awareness day for ME..." First?
  2. Sean

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    While the political class may have been a critical part of how the appalling mess that is ME unfolded, they will also be a critical part of the means for us to get out of it. This is very encouraging development. Big thanks to all in the UK who have lobbied their MPs.
  3. Sean

    Association of adverse childhood experiences with the development of multiple sclerosis, 2022, Eid et al

    Nor funding bodies, ethics boards, or trial oversight committees. The whole system has had to fail, at least substantially, on a sustained basis, for this appalling mess to come about.
  4. Sean

    Increased spontaneous fronto-central oscillatory power during eye closing in patients with multiple somatic symptoms, 2022, Xiquan et al

    Yep. A solid example of how a bias can thoroughly contaminate every single assumption, inference, extrapolation, and interpretation in an argument. This is what happens when falsification is no longer a methodological requirement. It is impossible for us to prove we are doing it 'right', or at...
  5. Sean

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    This. If you want to find the flaws in your own argument, give it to a competent honest sceptic to tear apart.
  6. Sean

    United Kingdom: Action for ME (AfME) news

    The health of people with M.E. is improved via access to our holistic Healthcare Services, Why the word 'holistic' in that statement?
  7. Sean

    A Shift in Approach: Assessment and Treatment of Adults With Functional Neurological Disorder, 2022, Keatley & Molton

    Translation: We don't know what is going on, and don't want to admit it. So here is a word salad with dollops of hand-waving instead. Gee, I can't imagine why that is. Empire building, with prizes for everybody, except patients. Ethical challenges, like why it is okay to con patients into...
  8. Sean

    FII (fabricated and induced illness), and the new ME/CFS guideline

    And any gains can be lost. We have all seen how the BPS juggernaut, in all its forms, just continues steaming right on, unhindered by any concerns of error or harm.
  9. Sean

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    I knew somebody who early in adulthood developed extreme RA, to the point where by his early 30s his body was seriously deformed, he suffered constant serious pain, needed full time care, and had his legs amputated because they were useless and just causing him serious problems. Psychosomatic...
  10. Sean

    An online breathing and wellbeing programme (ENO Breathe) for people with persistent symptoms following COVID-19:.., 2022, Phillip et al

    I love singing and music. Used to sing in a small a capella group, and solo & accompany others with a guitar. If there is anything I am motivated to do as therapy it is singing and music. But it doesn't work. It is just another thing that makes you sicker the more you try. Trust me, I tried...
  11. Sean

    Functional Cognitive Disorder: Differential Diagnosis of Common Clinical Presentations, 2022, Kemp et al

    There is no 'secondary gain' for ME. It is all major primary and secondary losses.
  12. Sean

    YouTube videos: David Tuller on Tub Talks With Damon discussing ME/CFS and Long Covid, 2022,2024

    That was good, if a little different. Conducting an extended serious interview in a bubble bath is one way to make it hard to forget. :laugh:
  13. Sean

    Guardian UK article, Doctors could soon face action over ‘misleading’ social media posts, April 2022

    That could cut both ways. What is regarded as 'misleading' depends on who has the power to make that call. Good. Though enforcement could be tricky.
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