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Worth it for this alone. If you can't meet the minimum methodological standards, you got nothing. Not a less reliable but still useful result. Nothing.

So certain.

Another is that we already have them, and their results clearly show no benefit from the psycho-behavioural approach. Which is why the BPSers are desperately trying to downplay and dismiss those results, and avoid using those kinds of measures again. We don't need any new better measures...

Does Geraghty know about this bit of Garner's story? https://www.s4me.info/threads/paul-garner-on-long-covid-and-me-cfs-bmj-articles-and-other-media.15629/page-63#post-338280

This. We may not be able to adequately blind all measures in all situations, but we can use much more objective measures of the real-world practical consequences of the self-reported benefits, including the critical testing of correlations with self-report measures. Patterns of changes in...

Yes. This is a political problem of why standards are not being followed for ME, and are indeed actively being diluted and discarded. It isn't a technical problem with the normal standards, that everybody else has to follow.

How accurate his sub-grouping is remains to be seen, but otherwise seems a pretty good piece from somebody who (now) gets the basic story.

This.

Sound familiar?

they modify the patient's perception of their health They are not even doing that. All they can safely claim is that they are modifying patients' reporting of their health. A very different thing, and in no way therapeutic in any meaningful sense of the word.

I'd be the last to claim that patients and our allies have handled all this perfectly. We have made lots of mistakes. But there are some things that cannot be compromised on, like methodological and ethical standards. Apart from any other reason, the implications of such compromising don't...

And that they are still obsessed with fatigue.

@Joan Crawford :inlove:

Anti-science par excellence.

Are the prominent medicos who have driven the whole CBT/GET/BPS agenda not also a small, vocal, and unduly influential minority?

Both the advisory and writing groups in this review need to have a solid understanding of methodology in general, and of the specific issues with its application in this area of medicine, including for safety. The psychosocial school is demanding, and often simply implementing without any real...

PEM is always there, in my experience. It is not something that goes away. What can change is how much it is provoked/exacerbated by misunderstanding and mismanagement.

Proton pump inhibitors definitely work for me, so it is good to see that reflected in the clinical trials. And a little surprising to see that Aspirin has almost no effect on vascular disease and events.

Half the battle is getting the criticisms on the formal public record, so nobody in power can say they didn't know, that they were not warned.

Yes, it is. :oops: :(