Search results

IIRC, they measured PEM with a single self-report question.

Transparency is something Cochrane need to address.

How is this not blatant fraud/perjury/false statement?

The one thing this review cannot become is a political compromise. This is all about methodology, nothing else. Get that right and the rest will follow. Get it wrong, and we stay stuck in this cesspit. Yep. Medicine seems to have not learned that if you want to find out where the flaws are in...

It is all about methodology. The rest is toxic crap.

GET should be tailored to the individual and guided by professionals who are expert in the delivery of graded exercise therapy with the aim of empowering the individual to take control of their own exercise plan and recovery. There is that whole patients are deluded morons who need to be guided...

And the effing CDC. Again. So we currently have to simultaneously respond to reviews from Cochrane, NICE, and the CDC. All of them critical, much of it repetitive. Grrr. :mad:

Yes, that ignorance has to be wilful in the extreme. Nobody claiming to be doing a serious honest appraisal can ignore that stuff.

"the scores for somatization" 'the scores for our definition of somatization'

THIS!

If the research shows anything it is that ME does not respond to any activity, exercise, or rehabilitation in the normal restorative way, but in fact does the opposite, with patients becoming sicker. It is, indeed, the most distinctive and defining feature of the condition, and nobody knows why...

In particular, Robert Courtney and @Tom Kindlon submitted influential major detailed comments that Cochrane published, but did not adequately respond to. Thank you for that long overdue and thoroughly deserved acknowledgement.

I love it when @Trish goes full Angry Koala. :jimlad: Source

Who still have serious power and influence. Unfortunately they are not a couple of nobodies with a couple of dozen followers on Twitter.

Are chronic viral infections known to always get worse over time?

There was no evidence of excess harm with graded exercise therapy... ...and never will be if you don't look properly.

That 'cannot' is doing a lot of heavy lifting.

The effect of McPhee is easy to see for those whose eyes grock realitee.

Nobody is saying that actimetry is the gold standard, or the only measure to use, just that it gives an important part of the picture. The key point about it is that the data it does collect is objective. How to interpret that data is a different question.

worsening of left ventricular ejection fraction Wasn't that also a finding in some ME patients a while back?