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  1. Arnie Pye

    Functional Neurological Disorders - discussion thread

    I'm replying to a reply from 2020, but just wanted to point out that research by Professor James Malone-Lee has moved things on a bit with regard to testing for and treating UTIs. Unfortunately I don't think the NHS has taken it on board - it would cost a lot more than the "five days of...
  2. Arnie Pye

    Psychological Predictors of Self-reported COVID-19 Outcomes: Results From a Prospective Cohort Study, 2022, Ayling, Chalder et al

    Can someone please sack these people and spend the money that becomes available on doing biomedical research. These people are simply a waste of funding and air.
  3. Arnie Pye

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    From the healthline link I'm amazed that San Marino and Cyprus have such high levels, being so far south. But then San Marino apparently has fewer than 35,000 people living there so perhaps there is a cluster of people with an unfortunate genetic makeup which makes them more likely to get MS.
  4. Arnie Pye

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    Ooh, good point! I found this from the MS Trust in the UK, which may be of interest : https://mstrust.org.uk/a-z/how-common-multiple-sclerosis And for something more detailed [at least in some respects]- The Multiple Sclerosis International Federation, Atlas of MS, 3rd Edition (September...
  5. Arnie Pye

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    The article linked by @Mij has this comment : But I have also read this in the past : Title : Multiple sclerosis in the Orkney and Shetland Islands. I: Epidemiology, clinical factors, and methodology. Link : https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC1052085/ I don't have numbers...
  6. Arnie Pye

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I think the clinics are carrying on regardless as far as I can tell. They've just changed the name from Graded Exercise Therapy to Graded Activity Management or come up with their own name. So, instead of one "treatment" to avoid i.e. GET, people now have to be wary of potentially dozens more...
  7. Arnie Pye

    Assessment of Functional Mobility After COVID-19 in Adults Aged 50 Years or Older in the Canadian Longitudinal Study on Aging, 2021, Beauchamp et al

    [Tongue in cheek] I wondered if "Functional" (in the title) was being used in the way that the general population uses the word or how doctors use the word in "FND", but I couldn't make the FND usage make sense in any way at all. So it suggests that it is being used in the "normal" way.
  8. Arnie Pye

    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    I was referring specifically to Long Covid. Duloxetine/Cymbalta has a reputation as one of the worst anti-depressants for prolonged SSRI discontinuation syndrome/post-acute withdrawal syndrome there is, as well as some very unpleasant adverse effects. As someone who has gone through this...
  9. Arnie Pye

    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    Blood clots in the lungs? Or the heart? Chest pain? The gut? Diarrhoea? I'm sure there are many other symptoms of Long Covid than those above, and some of them may have a cause lying in the brain, I'm not denying that. But prioritising the brain rather than the lungs or the heart or the gut or...
  10. Arnie Pye

    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    Methylphenidate, Duloxetine, and Brexpiprazole - these can otherwise be described as Ritalin, Cymbalta, and an atypical anti-psychotic - also described in Wikipedia as 'a dopamine D2 receptor partial agonist and has been described as a "serotonin–dopamine activity modulator" (SDAM)'. It would...
  11. Arnie Pye

    Physician's Weekly: Why Patient Advocacy Is Important Without Being Hated, 2018, Girgis

    What a flaming liar! Yes they do! [Edit : I was referring to the comment that they don't judge behaviour.]
  12. Arnie Pye

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Was the saline given to you in a drip? I always assumed that was done to increase blood volume, not make people pee, but then I suppose the kidneys excrete the extra after a while. I read this link quite some time ago, but it has been deleted from its original home and is only available on the...
  13. Arnie Pye

    Comedians could be prescribed on NHS to help patients struggling with trauma: Bristol Uni

    If I had been recently traumatised and I was told to go and see a comedian I would feel that my experiences were being made fun of and were not being taken seriously.
  14. Arnie Pye

    The complex syndrome of functional neurological disorder, 2022, Edwards et al

    I'm glad I was never diagnosed with FND when I had serious gait problems. Luckily for me my real problem was discovered by accident as a result of having a CT scan for a possible stroke (I hadn't had a stroke.). It turned out I had NPH - Normal Pressure Hydrocephalus. Without the accident of the...
  15. Arnie Pye

    Neural correlates of the attentional bias towards pain-related faces in fibromyalgia patients: An ERP study using a dot-probe task, 2022, Mercardo

    For info on what's involved in the "dot-probe" stuff : https://en.wikipedia.org/wiki/Dot-probe_paradigm Edit : It's just occurred to me that if I was presented with a neutral face and a face of someone apparently in pain, I would ignore the neutral face and look more at the face with "more...
  16. Arnie Pye

    Study protocol ... phase III trial ... of low-dose naltrexone (LDN) in patients with fibromyalgia (INNOVA study), 2022, Younger, Luciano et al

    Quite a few people with hypothyroidism swear by LDN, and have said that it helps reduce pain and symptom severity. I've wondered a few times about trying it, but don't know how to get hold of it. I know it can be done - some people get it via a doctor in Glasgow (I think), but that's all I know...
  17. Arnie Pye

    UK - NHS England online tool and clinics for long Covid.

    I wonder what evidence Dr Burns has for his pronouncements other than wishful thinking? I realise that many people do recover. But for those who don't I wouldn't be surprised if Dr Burns is going to say the problem is all in the head. A very big problem for everyone who ever gets ill with a...
  18. Arnie Pye

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Mine does too. But annoyingly it never tells me why any particular page is blocked.
  19. Arnie Pye

    Use of Dietary Supplements and Perceived Knowledge among Adults Living with Fibromyalgia in Norway: A Cross-Sectional Study, 2022, Kvael et al

    If people taking dietary supplements had high education then it suggests that they may have higher levels of disposable income than people with poor education. If money is particularly tight then people are surely much less likely to consider spending money on dietary supplements.
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