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That Flex project is not specifically about ME : but if GPs are encouraging ME patients to join then any results (which we can all assume will be manipulated to give the results the researchers want) will be framed as an ideal treatment for people with fatigue from any cause including people...

With more and more conditions being treated as psychogenic, and doctors being told not to treat anyone with medicines, I foresee a huge increase in the number of people being left untreated for invisible diseases. I imagine that number is already quite high, and that many of the ignored are...

I've had this reaction to metoclopramide. The first time I was given it was as an anti-emetic during surgery in the mid-90s being done in the private sector. I had no problems with movement before the surgery started but I did as soon as the paralysis was reversed. They couldn't say it was a...

Title : Medicine is Political Link : https://www.fast.ai/2021/10/12/medicine-political/ Article mentions ME/CFS and Covid as well as some other conditions. Opening paragraph :

Link : https://www.bbc.com/future/article/20211112-the-people-with-immune-amnesia

The idea of getting patients and the public involved in reviewing medical research isn't new. This link was published in 2018 : https://blogs.biomedcentral.com/bmcblog/2018/09/10/patient-peer-review-in-academic-journals/ and the BMJ adopted their Patient and Public Partnership in 2014 ...

Doctors and therapists could use questionnaires on people with broken legs and get "evidence" that the person has psychological or mental health problems. After all, questionnaires are designed to catch patients out, and not only that they are often written so that questions and possible answers...

Ditto. I have had someone else's notes plonked into the middle of mine. One of the miscarriages in my records isn't mine, and when I told my doctor he suggested that I might have forgotten! How many women forget miscarriages, particularly since I was going through IVF at the time? I've had...

Shouldn't treating low or high adrenaline and cortisol be part of treatment for psychiatric disorders? I discovered that my long-term anxiety and most of my depression disappeared when I fixed my low levels of iron. I didn't need anti-depressants or therapy to get rid of it.

When I first developed a fast heart rate (100 - 160 beats per minute) it eventually turned out to be caused by very low iron. Improving my iron levels reduced my heart rate, although it has never reliably returned to what it was before the tachycardia first started.

When someone is afraid or in pain for any reason I thought that it increased output of adrenaline and/or cortisol - and adrenaline and cortisol both have effects on other hormones plus some organs. If that fear or pain lasts for a long time then perhaps the adrenaline/cortisol output might...

Can anyone explain what valence means in normal English? valence noun [ C ] us/ˈveɪ·ləns/ chemistry the ability of an atom to combine with other atoms, measured by the number of electrons it will lose, add, or share Describing communication from patients as "deviant" is an appalling use...

I wasn't aware that hypnotherapy worked for physical illness.

"a lot of COVID survivors are a little cautious and uncomfortable when they hear from a provider say you may have a problem with anxiety because the message received is that it is all in your head.” The reason for this anxiety is glaringly obvious. Being told your problem is caused by anxiety...

I suspect that SW is expecting to be made a Lord one of these days. Perhaps he's afraid of rocking the boat - or being seen as a boat-rocker.

Merged thread Claim that French study showed long COVID doesn’t exist misinterprets the study and fails to account for its limitations This article : Link ...

They do a lot more than that. They flag patients that they don't like or they disbelieve. And these apparent snap judgements are life sentences because none of them ever get removed, as far as I can tell, nor is there any appeal.

I don't think that is true in the UK. The NHS uses serum B12 and people are usually dismissed if the result is anywhere within range, even bottom of range. And if the result is just below range then doctors often appear to think "That's close enough". The same attitude of "That's close enough"...

It's something I've always wanted to test but it's expensive so I've never had it done. I remember iodine seemed to be something people often had at home when I was a child. They would paint it on to cuts to kill off bacteria. Nowadays I don't see it for sale anywhere (offline), nobody ever...

I wonder what happens to the patients it doesn't work for?