Personally I can’t hack the whataboutery and prejudice on these Reddit threads. One interesting thing is that there’s a fixed “idea” of who we are, you just know when you meet them they’ll be <insert insults> oh but it does exist maybe in some people, but not in the ones I meet.
Sarah Boothby asking Dr Warren what Maeve’s daily calorie intake was. He doesn’t know. Not the first time she has asked this question, no difinitive answer from the Drs.
Sarah highlighted that at times it was 200 calories per day, did that concern DrWarren?
Sean O’Neill asks if Dr W thinks ME is psychological
Dr Warren doesn’t know the cause of ME
He doesn’t recall the tone of so-called “heated discussions in meetings” with Dr Shenton
I get the gist that after NG failed, Maeve wanted to try oral feeding, or that’s what the Drs say anyway. See tweet.
Tweets mentions Dr Warren comes across as “offended he’s being questioned” and “obnoxious”
Timeline and dates would be a great help with this whole inquest, am sure the Coroners...
Exchange with Devon Council - Maeve wasn’t weighed, suboptimal calorie intake
DR Warren does not think notes of his exchange with Dr Shenton re Ng reflect the sentiments at the time
Dr Roderic Warren Endocrinologist -also trained in Diabeties and general & internal medicine
Does not know if there is any specialist training for ME in the NHS
Yes please!
There’s a lot of good questions being put to Dr Roy from what people are tweeting, but there’s a lack of response being reported. He’s also being accused of waffling, and seems to be getting peoples backs up so it’s hard to parse what he’s actually saying.
From Kags on twitter “Action for ME medical adviser consults with Dr, who comes away thinking they’ve been discussing “theories about ME” and there’s no decisive evidence
Dan Wyke - The Coroner states lack of dietetic (edit spelling) support in NICE guidelines and indicates she will address this
Questioning of Dr Roy by Sean O’Neill
He asks about the changes at RD&E for patients with SVS ME. dr Roy says he no longer works at RD&E….everyone did their absolute best for Maeve
Dan Wyke on twitter “Dr Roy’s argument seems peculiar - we couldn’t give a dying person TPN because it’s dangerous” (Dan’s paraphrasing)
Sarah Boothby is questioning Dr Roy about contingency if the NG failed
So there has been a fair bit of activity with Dr Roy it will take some time to put the tweets together. Suffice to say, he’s not coming across as someone who understands ME.
He has also mispronounced Maeve’s name on at least two occasions.
Dr Roy questioned Dr Weirs advice for nutrition in an exchange with Dr Shenton - instead wanted psychological support for Maeve, she shouldn’t be seen by gastro
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