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  1. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Drs seem great at refuting suggestions for treatment, but clueless at resolving medical problems.
  2. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I think you can have sparkling but maybe don’t try it! I’d suggest a bottle of iced latte for when you’re sent out for a break, if there’s a shop or machine.
  3. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I’ve had a Quick Look back and found these two quotes about “TPN and Sectioning” It does seem that Dr Roy is the source of this idea, so will be interesting tomorrow to see why he thought it so relevant
  4. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Yes although weirdly the tube or TPN (in your vein?) feeding is fairly routinely given to people who can’t sit but do have a functioning gut.
  5. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    That Reddit thread is toxic nonsense
  6. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Yes! ALS is known as Motor Neurone Disease in the UK I think?
  7. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Yes, the best cure for manifestations of mental health issues is to withold care until they just starts behaving themselves. In addition, do you know how difficult it is for the staff dealing with these patients… (sarcasm, in case anyone is wondering) I hope George Monbiot is going to write...
  8. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I suspect that those persons include the 2 nurses who are too ill to attend (reasons not given) Edit- I think it was mentioned on the first day that there was some disconcertion that a Consultant’s recommendation (for the Neurology ward for Maeve) had been overruled by the site management team...
  9. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    The Council had a number of reasons why they couldn’t assess Maeve, essentially because she was too unwell to be visited by a social worker to be assessed, she was “in and out” of hospital. None of it is good enough. People are treated at home all the time. I do wonder whether the Council could...
  10. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    It seems this is under the Heath &Social Care Act 2008 Regulations 2014 Regulation 14 https://www.cqc.org.uk/guidance-providers/regulations/regulation-14-meeting-nutritional-hydration-needs The Council basically said they couldn’t do an assessment for Care purposes, and when Maeve was...
  11. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Dr Roy’s evidence on this will be interesting. Dan Wyke on X twitter says tomorrow will be Dr Roy, Dr Warren and maybe Dr Tate (I’m not familiar with these or their specialities) Report of todays inquest in The Canary (I don’t know how to copy the text. sorry)...
  12. MrMagoo

    issue of 'chronic fatigue' without the syndrome being used by media and others and probably pwme

    I think colloquially, exertion is taken to mean “over and above” normal effort, so people would be thinking, oh so you can’t run a 5km run, rather than you can’t wash yourself.
  13. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Paul Keeble has some final comments on Social Care, apparently Dr Roy will be questioned tomorrow morning Maeve raised a safeguarding concern herself, about lack of care for her from the Council; Council has no record of this. Sarah Boothby was left to care for Maeve despite telling Council...
  14. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I am a little bit reassured that, around the internet, non-ME ppl are pointing out disorders and diseases where feeding is given by NG/PEG and saying “but we do it for X, why wouldn’t they do it for ME?” The public are able to see things like sensory issues, nutritional intake in other illnesses...
  15. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Some tweets about the questioning of Dr a weir by RD&E Hosp representative - of note is that Dr Weir is advising to go against Royal College of Physicians standards re feeding, which Dr Weir points out aren’t right for pwME
  16. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    likely, but can’t confirm as no information on X either way. Maybe @dave30th can update us later?
  17. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I believe Dr Roy is the Gastroenterologist at the hospital and he was against TPN due to risk of sepsis, mentioned briefly yesterday. Assume he will have been called to give evidence to the Inquiry, we don’t know in advance who is appearing so we’ll have to wait to see.
  18. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I’m Jumping back to Dr Weir’s evidence, as I think this is a really key point, he referred to a report in 2002 regarding feeding for pw severe ME, a tweet suggests it’s this one. https://me-pedia.org/wiki/Chief_Medical_Officer_Report_2002 http://www.erythos.com/gibsonenquiry/docs/cmoreport.pdf...
  19. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Some tweets about Social Care evidence. It seems they “insisted” on contact with Maeve, eventually accepting she wasn’t able to do that
  20. MrMagoo

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Dr Weir has finished. The next person is Mrs K Bradford of Exeter Council, Adult Social Services team manager
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