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From various tweets it seems Dr Weir has said that with IV Saline and nutrition, most patients recover to where their life isn’t threatened.

Paul Keeble is also back on twitter “Dr Weir is seeing patients as unwell as Maeve about every 6 months” “Feeding in the community. NG then rapidly NJ then PEG most patients end up with PEG”

But a “regular person” wouldn’t be expected to understand ATP or biochemistry or research specs. I think if the Daily Mail and Co were saying “Maeve had ME/CFS which is an energy-limiting condition” rather than “Maeve had Chronic Fatigue” it would do a lot of good for public perception.

Good reply there.

It was 2021, I’d say Covid was at its worst the year before in March 2020

I think I’d do a leading introduction “It was said at a recent Coroner’s Inquiry that there is no specialist service for severe ME in the NHS. Does your area provide any services to patients with Severe or Very Severe ME/CFS? What accommodations are in place for pw S/VS ME please state Have...

This telegraph piece is excellent Link if you can’t use the paywalled one above https://archive.ph/fRT5B

I believe in his evidence he said pwS/VS ME get a side room with black out curtains automatically plus there has been specific S/VS ME training for nurses Perhaps the Drs and Consultants could get that training too?

Apparently starts at 9.30am tomorrow

From written evidence, GP Dr Shenton “I don’t believe I can put ME on the death certificate because many of the Drs involved do not believe ME is a medical condition” “Multidisciplinary was installed too late. Everything was too late”

No time for Dr Weir today, he will be up tomorrow morning.

P Keeble is crashing so won’t report much more today (hardly surprising this would take a toll on anyone) “Maeve asked about contingency plan for if NG doesn’t work, on 28 June. It seems there was none” I will look around twitter for snapshots of the inquest. Apparently Dr Weir is up this...

Yup, the picture of different people making different decisions, or not making decisions, is building. We’re getting some idea of the “passed from pillar to post”

“Not sure if the press is here today but some firecrackers towards the NHS about lack of provision” “Sarah Boothby commenting on various consultants but Dr Strain being the lead but being overruled”

This one isn’t very clear. Dr Strain was seen as the lead but has no nutrition knowledge Psych said it isn’t a terminal condition

There are still Drs all over the NHS who think it’s psychological and Dr Strain has had frank conversations with them

TPN would only be offered if she was sectioned

It seems Dr Strain is giving evidence this morning. He is a Consultant and also a Snr lecturer at Exeter Uni Medical School and advisor to Action for ME. In June 2021 Maeve had been put on an eating disorder ward. NG tube was considered, but she couldn’t tolerate sitting at 45degrees so it...

That’s why I like the term “energy limiting condition” because it does explain (in a simplistic way) that we have energy, but it’s limited. That’s an easy concept for the “regular person” to understand. Oh you have some energy but not enough. That’s why you were at lunch last week but in bed...

I think colloquially people say “chronic fatigue” because it’s shorter. They should be saying ME/CFS which is shorter still. I see the Daily a mail in one report today did a side panel “explainer” of Chronic Fatigue which said the available treatment on offer is CBT and Graded Exercise Therapy...