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I mean, the threat of being sued is really the only hammer left to crack this nut. I think if there were specific guidance as a result of this, and it wasn’t followed, and someone died it could be unlawful killing?

I don’t think they’re looking at prosecuting an individual, I don’t think gross negligence manslaughter would hold up, but I think the NHS/Government is going to get a serious rocket up the backside over this. I pray that @Jonathan Edwards excellent feeding paper is adopted as a protocol or...

W need a legal person to explain the possibilities, but this Coroner has a plan and knows exactly where this is headed. Hopefully by raising it with NHS it means were it to happen again, it would be Unlawful Killing as they’d been put on notice at the highest level that these failings aren’t ok.

Now that is interesting…

It’s an inquest into Maeve’s death so there are set outcomes -natural causes, accidental, lawful/unlawful killing, open verdict, industrial disease, narrative verdict. The Coroner then makes a report if necessary to the appropriate person or authority, I think that could be the HealthMinister...

It’s not public record so the public don’t know until on the day. A request for a list by another poster was refused by the court.

I wonder what the outcome is likely to be? Is it too much to expect Unlawful Killing? I think so. I guess the Coroner will be looking at a narrative verdict and reporting it to the NHS or Health Secretary?

And that’s the key all the way through, isn’t it? Wouldn’t you read up? The hospital staff, didn’t they read up? The dietician? If you’re contacted by Charles Shepherd, from a Major ME charity, don’t you read up?

Heartbreaking

Dr Shenton is not listed as a team member at the surgery where Dr McDermott is a partner

Apparently two nurses involved in Maeve’s care won’t be able to attend due to sickness.

The letters and notes of Dr Shelton being read are sometimes damning - need an NG tube, lack of care plan, needs admission, no one willing to help

From P Keeble tweets So far It’s been decided that Maeve’s Gp Dr Shenton is too unwell to attend, instead focussed written questions will be sent. She has PTSD. Another GP Partner Dr McDermott doesn’t seem to remember much, despite many complaints from Sarah Boothby about lack of help. Seems...

Very good point, together with “ME isn’t real/you don’t have ME just mental problems” it’s like the school playground “my dad is bigger than your dad” my ME Specialist service will tell your Psychiatrist to bugger off! If there no ME specialist service with an ME Consultant then the average...

A few pages ago I linked to it, they follow an industry-standard process where a panel reviews applications -apparently. I think we were wondering about asking to see the decision or grant application. one of the PROMS will generate an info set which can apparently be used in research?

If the NHS can’t implement the NICE guidelines then why bother with PROMS. Well we know why, check-box “look what we done” head pats. Whilst Millie and Carla lay in hospital being deprived of liberty and tortured, and Maeve lies in her grave. Shame on MEA and Tyson and Gladwell.

I’m also interested whether anyone is able to update us? I wanted to attend but I just can’t bear it and am not well enough. Is anyone allowed to report on what’s said or are there restrictions?

I think it’s mixing two concepts, understanding that you have ME and understanding the symptoms ME causes. “I was helped to explain my symptoms to others” is this bad English? I write sentences like that then chastise myself. The whole thing is just a load of old tosh, do what we always do...

I get what I call “adrenaline rush” and it’s very occasional and absolutely out of nowhere. My body starts to feel like after you’ve trapped a finger in a door, or had a terrible pain/shock/injury, the pain has gone but all the adrenaline is still coursing, breathing fast, you get jittery, I...

Indeed, I was told that the there seems no reason for good or bad days, but there is a reason-it is always caused by energy use. Just recently in an NHS service.