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'Many patients with suggestive symptoms of CES have no radiological correlate.' This is hardly astounding, though, given that doctors and physios know very well how devastating the consequences can be. They send anyone suddenly developing symptoms that could indicate CES off to A&E, knowing...

I usually start from the assumption that a study on a branded food supplement is part of the marketing strategy. It can therefore be ignored until it's been replicated in a reasonably well-defined group, with measurable outcomes...funnily enough, these tend to be few on the ground!

I'd either have to wear an entire goldfish bowl over my head, or boxing gloves on my hands, before I could remember not to touch my face for more than 12 consecutive seconds! #MEbrain :laugh:

I suspect we don't, at least nothing very solid. I think he may be referring to the fact that a proportion of ME patients report that they've had good remissions followed later by relapse, to the point that it's become a commonly recognised (as opposed to actually researched) feature of one...

It's already doing so, if the TV programmes are anything to go by. I watched last night's episode, and it was heartbreaking – some lovely people, trying so hard, but just struggling along on next to nothing.

If people are so dependent, they'll surely just resort to stealing? I'd never heard of schemes like this before. It sounds like a major assault on human rights.

I'm not sure – it could certainly compromise people doing certain jobs, but as someone who's always had OI, I suspect those prone to it will naturally avoid going into those occupations. I realise it isn't the case for everyone, but OI has only ever affected me when sitting upright at times...

It would be interesting to look at people with other conditions causing stiff PRBCs, to see if they have the same response to it.... (Thinking ahead too quickly, as always – obviously the first priority would be bigger studies in ME!)

Yes, that could be interesting – it seems to run in our family. I've had it since childhood, and getting ME at 17 didn't make it any worse, but of course it's possible I might otherwise have grown out of it. My mum struggled with it all her life, but her sister (who would actually pass out if...

Yes, that's because it comes as Diclofenac sodium, or Diclofenac potassium. The potassium version apparently works quite a bit quicker than the sodium version. (I was prescribed it for a short while after an injury, and the pharmacist commented aloud that he was surprised I hadn't been given...

Diclofenac is just the generic name, Voltaren or Voltarol is a trade name. If it's diclofenac sodium (as opposed to diclofenac potassium), it'll be the same thing. The pharmacist would be able to confirm, though. I hope you get some relief from your headache soon, it sounds horrible. I never...

It's complex because no-one has followed patients over time. We have no idea how many people recover permanently, and how many have a sustained remission but then relapse again later. Even if the will were there, I don't think it'd be realistic to do this at the moment – we need stronger...

That reminded me of a tip I might or might not have mentioned here before: FaceTiming my dinner! :laugh: If I put something on a low light that's going to take a while to heat up, or I want to make sure a huge batch of chilli is simmering rather than boiling furiously, I switch on FaceTime on...

@NelliePledge and @Invisible Woman, it struck me that it'd be quite hard to choose a specialised stool without trying it out for comfort and range of heights first. A quick search for local-ish suppliers of rehab and physio equipment yielded this company, which does sell saddle stools...

So changes to the way you do it could potentially help quite a bit – e.g., keeping your frequently used pans, crockery and seasoning as close to your work area as possible, and only going to the food cupboard and fridge once. It took me a while to learn to organise everything I eat regularly...

Chazzer shop? Then you can donate it back if it's not right... :laugh:

It was, but it's long enough ago to be funny now! It was just unlucky that my neighbour was away at a conference the first night. I heard him coming home from work on the second day, and managed to yell out to him through the cat flap. Needless to say, I now have a falls alarm and a key safe...

PS: avoid perching stools, as they throw all your weight onto your thigh muscles; and if you become clumsy when you're fatigued and brain fogged, avoid any kitchen seat with legs that flare out. I had a perching stool imposed on me by Occupational Therapy, and the flared legs caused more trips...

I used to use an office chair, but the scooting action was very hard on my thighs. These are the most painful muscles of all for me, and very prone to burning like crazy as soon as I go to bed, so it was a bit problematical! It's also surprisingly hard to steer a rolling chair, even backwards...

Woo woo-woo woo woo woooo! (To the tune of The X Files)