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Wheelchair darts! :cool: New Paralympic sport in the making. Mind you, the argument over whether the footplate or the drive wheels has to be behind the oche could go on for decades...

Well done for getting through it! The visiting nurses probably won't have been given information, as the central team can be a bit hopeless. They were overwhelmed when the project started in April, and now that thousands more households are taking part, it's unlikely to get much better. It...

Is it not the individual healthcare professional who makes your appointments? The nurse always rings me and asks when she can come – I prefer to be her first call in the morning so that the rest of the day's free, but she'd do evenings if I asked. Maybe try saying when they call that you're not...

I usually follow conferences as best I can, but there was no way I could find $50.

@Simon M – my brain's not capable of retaining much information these days, but Alain Moreau at Montreal is one other more doctor who's made the link: “With this very severe COVID-19 disease, where we’re now dealing with millions of people suffering from it worldwide, the question is not if...

I've done the survey – it's quite long, especially if you have lots to say, but you can do a bit and then go back to it later. The language used is very simple, and it's possible to go through and simply tick boxes if you haven't the energy to write anything.

I can't say I've experienced this, but I hope you're okay. :hug:

Thank you – I always wait for you to comment and explain before I allow myself to get too interested! These studies can sound sooo plausible when you know nothing about even the most basic cell biology. :laugh:

Oh no!

True, but so many of us have never had access to a doctor with an ME specialism anyway that it may not make much practical difference?

I think it can be quite complicated, as sensations of hunger don't only come from an empty stomach. Hormones are at least as important; there are several different ones involved, and as soon as your body starts generating them, you're likely to experience feelings of hunger. Another reason is...

It wouldn't be the first anti-rheumatic to affect sperm counts, and if they return to normal when the drug is withdrawn, it may turn out to be an acceptable side effect – a reversible low sperm count isn't harmful to a man who's already fathered his children, or to one who isn't yet planning...

Tesco don't charge for them unless you ask for them when you set your delivery up. To cut down on plastic I've always had my shopping delivered without bags; at the moment it's their choice to use them, so no charge.

This is why I think funding should go into provision of specialist ME nurses, not CBT practitioners. Most comparatively new patients need access to someone who can offer advice on learning to live with ME as well as possible; spot symptoms that may be amenable to treatment, or are not typical of...

Very much agree with what you say about similarities – there may be differences too, though. For instance, the history of harm and abuse caused by BPS practitioners has to be acknowledged (and might need to be part of the treatment for those who've been seriously harmed); the offer to patients...

I don't know about ranitidine, but you can buy a limited supply of famotidine over the counter. It's one of those meds that's probably best prescribed by a doctor where possible, to make sure that you're being monitored properly, but I know from a friend with a history of gastric problems that...

I've used this ever since they introduced it, I've found it really good. I usually have two deliveries a month, but if I need a small order that doesn't add up to £40 in between, I ask neighbours if they need anything – they often do. If not I stock up on something that will add a few quid to...

Welcome, @Aquarian1! ME groups are clubs no-one wants to have to join, but hopefully you'll find yourself among friends here.

Research it, so they're less baffled? Doesn't really apply to primary care physicians, of course. All they can do is follow best practice: rule out other possibilities, advise rest, explain pacing, and support applications for sickness allowances. It appears this is still too difficult for many...

Yes, me too – it does have a medical meaning that's a bit different, but all the same it's not quite right. Still think the most accurate definition I can draw from my own experience is an absence of energy, distinguishing it both from the normal sensation of tiredness, and from the...