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  1. Kitty

    United Kingdom: News from Forward-ME Group

    Agree, but I think it's because they're a hybrid between minutes (where only questions and decisions are noted, usually with one paragraph for each point/contribution – which they've done) and an article, where there'd traditionally be a lot more para breaks. If it helps, you can double space...
  2. Kitty

    Graded exercise therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane review, 2020, Vink & Vink-Niese

    It's not impossible to find it. It's more difficult in some cases than others, but the main problem seems to be that too many doctors and researchers actively avoid looking for it in the first place, due to sexism, politics, and financial conflicts of interest.
  3. Kitty

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    Just to play devil's advocate for a minute – I can see a theoretical benefit, if the two did turn out to be the same. New researchers and new funding might be brought in to post-Covid research, without some of the baggage that's been loaded onto to ME (which isn't our fault, or that of good...
  4. Kitty

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    Me too – and actually, I think the statement about fatigue not being the cardinal symptom per se comes from ME patients. I've heard numerous people either describe it as a lack of power, or say that it arises from previous activity (and is therefore part of PEM). I find it impossible to separate...
  5. Kitty

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It is deeply chilling to look back on the calculated cruelty inflicted on WWI soldiers when society decided it couldn't afford for so many to be ill or disabled – so it gaslighted them, as well as physically torturing them with 'therapies' – and what happened when society decided it couldn't...
  6. Kitty

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    'Not Yet Diagnosed, Nervous'. Originally used as a code by doctors to describe symptoms of shellshock. Edit: in a pejorative way. If there were no physical wounds, it was often dismissed and veterans were not entitled to the recognition and pensions they'd have got if they'd been injured by a...
  7. Kitty

    Patient Safety Commissioner proposal - First Do No Harm IMMDSReview, 2020, Cumberlege et al

    Thank you – it reads well (as did the first version, to my eyes anyway). Haven't the brain function to go into any depth at the moment, but I'd prefer you kept the 'as yet' qualifier on 'medically unexplained symptoms'. It makes it clearer that you're not accepting the term as some kind of...
  8. Kitty

    (UK) 'No DSS' letting bans 'ruled unlawful' by court, BBC News 14/07/2020

    Our council's rents do vary a bit, but it hasn't gone down the fixed-term tenancies route at all. They're either introductory (first 12 months) or secure. The only variant is where a secure tenancy is demoted due to serious breaches of the tenancy agreement, but they're pretty good at supporting...
  9. Kitty

    (UK) 'No DSS' letting bans 'ruled unlawful' by court, BBC News 14/07/2020

    How interesting – I guess it depends where you live to some extent? I was a new tenant when I first moved in, but everyone is automatically offered secure tenancies after 12 months unless they've failed to pay rent or caused problems. When I was considering renting privately, I found the...
  10. Kitty

    (UK) 'No DSS' letting bans 'ruled unlawful' by court, BBC News 14/07/2020

    Hear, bloody hear! I only got my social home because I'm disabled and over 55; had I not been, I'd have had to wait up to 10 years instead of 15 months. Everyone in my family lived in council housing, in an era where there were few obstacles to a family getting a tenancy, and where a young...
  11. Kitty

    (UK) 'No DSS' letting bans 'ruled unlawful' by court, BBC News 14/07/2020

    If HB were always paid promptly and direct to landlords, there'd be far fewer problems with arrears. As for trashing the place: this will always be a risk, but asking for references and following them up removes a lot of it. That still leaves a problem for young tenants with no history, but...
  12. Kitty

    DecodeME - UK ME/CFS DNA study underway

    Thank you – as he's a fairly recent appointment and probably still getting to grips with the brief, it might be best to keep our powder dry. Provided he stays in post, I could contact him in early February and give him the heads-up so he can be ready to say something about it. It's possible...
  13. Kitty

    (UK) 'No DSS' letting bans 'ruled unlawful' by court, BBC News 14/07/2020

    It's about bloody time – although I'm not convinced it will make much difference, as it'd be easy for landlords and lettings agents to ensure quietly that claimants entitled to housing benefit failed affordability tests. It would help if more councils processed applications promptly, as one of...
  14. Kitty

    DecodeME - UK ME/CFS DNA study underway

    Have just remembered – :banghead:! – that my local MP has been appointed the shadow minister for health and social care. He has a good record for engaging with constituents, so I could email him with information about the study in the hope that he can help with publicising it via (for instance)...
  15. Kitty

    Delayed wound healing?

    I don't recall seeing anything like this, but it hasn't really been my experience. After minor surgeries, I always have to insist I came back for stitches removal two days earlier than recommenced, otherwise they grow into the new skin and I need further surgery to remove them. (I've never had a...
  16. Kitty

    Low Vitamin D States Observed in U.S. Marines and Navy Sailors with Early Multi-Symptom Illness : Maloney, July 2020

    I wonder if clothing and kit whilst on active duty might also be a factor? If a soldier goes outdoors in a conflict zone, his/her skin tends to be covered up pretty comprehensively; they may also avoid going out at all except when necessary. Only thinking aloud, though, I don't really know...
  17. Kitty

    Morten group seeking info

    The fact that they're saying they'll change people's names suggests this is probably the case. If they wanted them for research purposes, it'd make more sense for them to approach the MEA, as @NelliePledge says.
  18. Kitty

    Concerns about premature linking of Long Covid and ME

    Same here; I'm not even sure what triggered my ME, but 'progressive accumulation of dysfunction' sums it up perfectly. Mine took many months too.
  19. Kitty

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Good! Judging by the number of articles posted on Facebook, there's been enough publicity in the mainstream media to have attracted the attention of people with no prior knowledge of post-viral syndromes, or personal experience of Covid-19. When healthcare is their actual paid job, there's...
  20. Kitty

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I get this when in severe PEM. I was worried when it first started, so I mentioned it to my GP; he said that in meningitis, there are usually other indicative symptoms. It's apparently not uncommon for people to have a stiff neck at the onset of viruses such as colds or 'flu, so I wonder if it's...
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