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This is very true. I have met cancer survivors who will talk about stress & negative emotions and the repression thereof, then getting sick and that forcing them to face up to those emotions and so recovering and now being in a much better place. No mention of the millions spent in research...

You've also got the work of Mansel Aylward @Hip. Very close ties to UNUM and was an advisor to the DWP. I believe UNUM funded the Centre for Psychosomatic Research in Cardiff where Aylward is a director. Aylward was around before Wessely graduated and possibly influenced him. Not sure of the...

I do know what you mean. On the other hand....think of all the times they do get it right. We don't always hear about that. I'm not a huge fan, as many of you probably already know, but some are genuinely very good. I always have to talk myself into going and will admit that I have caused...

But even when they did this they made judgements and drew conclusions they were not qualified to make. For example I was asked about employment history. My job was a very technical one and training to maintain professional certification and keep up to date was very expensive. Sometimes...

Exactly. When I found the question ambiguous and asked for more information I was told to answer no. Even though I would have loved to carry out those activities. Having answered no, as advised literally 5 minutes before by the same individual, the meaning was twisted to answering no meant...

Really? I didn't know that.

You may be right @Dolphin, but some of these guys wield an awful lot of influence through the health system. Again, I can't say what they do or do not believe, but if they had nothing to hide then why so secretive with the data from PACE for example. Why all the outcome switching? If their...

Yep. I even asked my GP if the iron tablets I was taking at the time could cause a false positive. She assured me it wouldn't. I was referred to a specialist who wanted to rerun the test and gave me a list of food and supplements to avoid completely in the couple of days prior to the new test...

You probably already know all this but, based on my own experience, it's probably worth keeping a food / symptom diary. Include all your supplements. It can provide useful clues to help you decide what to.do next and you may well be asked by your doc, or the person you might be referred to...

I think many of them are articles of their time. Many were written when these guys were virtually lone voices. They are long and rambling because they had to try to provide context. Our advocacy has moved on, but Hooper and Williams laid the foundations. Most of us here already know all this...

I haven't read the paper but just wanted to point out the future cost burden implications for patients in being unable to afford to invest in pensions. Though this is also true for others on very low income.

Maybe not directly, in the same way as insurance companies. However, in the UK, making it tougher to get benefits and having that publicized initially suited Unum and the likes as it meant people were more likely to take out private policies they would probably never need to claim on. Then, of...

Sometimes I think we're in a Catch 22 situation in the UK. On the one hand we are to be seen as having a psychological or behavioural disorder that perpetuates our condition. Naturally, we are in denial and by virtue of protesting are confirming our mental health issues. On the other, when...

What a load of s***e! Edit - replaced letters with asterisks in case initial reaction upset any one. Seriously though. Who are these people and why can't they go and get proper jobs?

That's the idea. Take people who are already likely to be isolated and inward looking and replace the potential therapeutic value of simple human contact ( assuming the therapist isn't a complete buffoon - absolutely no guarantees there) and replace with an app. In my view it's dismissive and...

I met a chap whose Springer Spaniel was a notorious spoon thief..... Perhaps he worked there & brought her to work? :laugh: More productive and less harmful research than that churned out by other people we could mention!

Nah. Probably just makes it feel like you're living longer. You know, those half hours or so spent repeatedly filling in the same form probably felt like days. ;)

This happens to me during PEM. All of those, except perhaps intention tremor. When I used to still practise very gentle yoga I started to a tremor and loss of fine tune control were early warning symptoms. The bobble head and distance judging were one of the reasons I stopped going to busy...

I got into a massive argument because of a question with similar wording to this: Have you found little pleasure or interest in doing things you usually enjoy? (Bolding to emphasise the difference). This was one of the experiences that led to me refusing to fill in questionnaires. I asked the...

Don't want to go too far off topic here but Is it? I'm surprised. It's one of 1st the issues that became very obvious to me. So much so the (actually very helpful) physio I saw tested me for dyspraxia. On occasion I've been with groups of ME patients and we've all been walking into walls &...