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  1. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Do you mean this section, Lucibee? (Taken from the Nursing Practice copy as I can't see all the PULSE article now.)
  2. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    If you’d like to get in touch, please ring or email our helpline or use the contact form. Email: helpline@wames.org.uk 029 2051 5061 Chair Jan Russell jan@wames.org.uk Youth and Care Officer, & Media Contact Sylvia Penny 029 2051 5061, sylvia@wames.org.uk Volunteering Coordinator Sharon...
  3. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    The 21 October 2021 article on Nursing Practice has reiterated the text from the PULSE article! https://www.nursinginpractice.com/clinical/vaccinations-and-infections/nice-to-publish-delayed-me-guideline-after-meeting-next-week/?
  4. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Looks like WAMES has uploaded a PDF to its site's files area (which if its a WordPress platform makes the file publicly accessible - if you have the file path for an individual file) and Pulse has linked to the wrong document.
  5. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Yes, my understanding is that it was a direct FOI (and it does not appear to be on the WDTK site). But it hasn't been disclosed (as far as I am aware) that a copy of the embargoed August 8 guideline (or any later dated iteration) had been requested and had been provided.
  6. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I think Pulse has got that wrong (about the guideline having already been released via an FOI). NICE has not resumed fulfilling overdue FOI requests. Mine is now 26 days overdue with still no response to two follow up requests for an ETA for fulfilment. Several others that are also long overdue...
  7. Dx Revision Watch

    UK - Resources for help getting food during quarantine and other supermarket related problems

    We were able to finalise an order this morning for collection tomorrow and our Favourites were available this morning using Chrome (which Tesco has told me in the past that their site is optimised for). I've just checked using Opera, which is the browser I prefer to use for everything else and...
  8. Dx Revision Watch

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    No, they won't give up. And this is why (unlike Jo) I think Sharpe, White, Chalder and friends will have a counter piece in the BMJ ready for when the guideline is finally released, or within a week or two following publication.
  9. Dx Revision Watch

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Yes, the site is back up again this morning. We've done a Click & Collect for the whole week's shopping for three adults every week since the start of the first lock down, although this last three weeks a neighbour is collecting for us as my husband is currently not driving due to a health...
  10. Dx Revision Watch

    UK - Resources for help getting food during quarantine and other supermarket related problems

    https://www.theguardian.com/business/2021/oct/24/tesco-website-hit-by-hackers-leaving-thousands-of-customers-frustrated
  11. Dx Revision Watch

    UK - Resources for help getting food during quarantine and other supermarket related problems

    You can request to cancel an already booked delivery or C & C via @Tesco on Twitter but you may have to wait a while for a response asking you to Twitter DM your details. Some customers who have ordered 3 or fewer items as a holding order for a delivery prior to finalising their order are...
  12. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    There are no Minutes of Executive team (whose membership overlaps with Guidance Executive) meetings posted more recently that the Minutes for April 2021: https://www.nice.org.uk/about/who-we-are/executive-team/executive-team-meetings The meetings in January, February, March and April 2021 all...
  13. Dx Revision Watch

    [Blog] BACME, NHS ME/CFS clinics shift from deconditioning to dysregulation model of ME/CFS in anticipation of updated NICE Guideline

    According to MEpedia: Murphy was appointed to the NICE guidelines review committee for ME/CFS in November 2018, a controversial appointment given her work on the PACE trial, and opposing the release of the PACE data to patients and scientists, along with the other members of PACE trial...
  14. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    The podcast and transcript are also on the BACME site, here: https://uk-podcasts.co.uk/podcast/let-s-talk-about-cbt/cbt-for-chronic-fatigue-syndrome
  15. Dx Revision Watch

    Open Functional microbiome study (Stanford)

    If you left click with your curser at the beginning of a paragraph, then move across and down the lines of text (as though you were selecting the text in order to copy it) to the end of the text, then right click and select: Copy (it won't appear highlighted), for me the text of that selected...
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