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Is there any way there could be an interim warning of there being evidence of harm for some participants in GET and CBT aimed at treating/curing the underlying ME/CFS? We singularly failed to achieve this in relation the NICE guidelines for ME/CFS during their rewriting process here in the UK...

Interestingly, though Crawley in Bristol/Bath seems to be switching to research involving children with ongoing problems following their intervention, reported as successful with 95% of patients (if I remember the figures correctly), Chalder in London still seems to have enough patients to...

Is this frantic press of ever poorer quality BPS papers a desperate attempt to overwhelm service commissioners before the publication of the final NICE guidelines, even though they must know it is too late to influence the guidelines themselves; is it part of their bid to colonise Long Covid; or...

Struggling with my memory this afternoon, but since the delay to the publication of the guidelines, haven’t White and others made claims that they had adequately addressed the PEM and GET harms issues in the unpublished data from PACE? (Can’t remember my source, but it must be either the Lancet...

I may be being unfair, but both in relation to FND and to MUS, I have seen articles where PACE is cited as conclusive evidence for the effectiveness of psychological and behavioural interventions and then assumed that this can be generalised to all FND and MUS patients without any evidenced...

Easily done

My heart sank as soon as I saw the phrase ‘sunflower therapy for children’. Can we not ensure ethics panels just automatically deny approval for any research containing an overly twee arbitrary name or a silly acronym? The lives of so many people would be so much better if this had been the...

[added - in summary my understanding is Franklin is proposing an actual BPS model of ME involving all three components, where currently restricted activity undermines our sense of self worth which in turn limits what we are able to achieve, this should be managed by an activity programme...

This point suggests we have two sources of bias in the self reporting, one where the intervention is successful in its attempt to change the participant’s world views (or for the cynic, brain wash them) and one where it encourages them to lie to conceal their personal failure to benefit from a...

The Court system in the UK was always slow, but with ongoing budget cuts and with the pandemic restrictions it has become much much slower.

I was hoping you would comment @Jonathan Edwards as I did not understand sufficiently the nuts and bolts of the science. So to undertake this research adequately we would ideally have a prospective study and better measures of what constitutes a reactivation of the EBV?

The numbers in this retrospective study seem to me quite small. Also though there would appear to be an association between Long Covid and EBV reactivation, there are some subjects with EBV reactivation and no Long Covid and some with Long Covid but no EBV reactivation, suggesting that EBV...

An article in Medicalxpress about this paper “Long COVID symptoms likely caused by Epstein-Barr virus reactivation” https://medicalxpress.com/news/2021-06-covid-symptoms-epstein-barr-virus-reactivation.amp [corrected typo]

An interesting article on a possible association between Long Covid and EBV reactivation, thank you Anil (sorry forgotten your user name here) for alerting me to this on Facebook: Investigation of Long COVID Prevalence and Its Relationship to Epstein-Barr Virus Reactivation Gold et al Pathogens...

Thank you @Jonathan Edwards for pointing this out. I had assumed that they had identified neuro inflammation in Long Covid rather than thinking through that the autopsies were of people dying at the acute stage, who had they lived may or may not have gone on to develop long Covid.

More information on Dr John Franklin Teeside University Website https://research.tees.ac.uk/en/persons/john-franklin-2 Publication Peak Oxygen Uptake in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A Meta-Analysis December 2018 International Journal of Sports Medicine 40(2)...

I suppose we need to answer the question are the cognitive issues in such as Alzheimer’s the result in part of the disease process that causes the death of brain cells, perhaps inflammation, as well as the loss of brain cells itself, or just the result of the loss of brain cells alone. In...

Sorry @Dolphin if it seemed I was criticising the creation of this thread, it was not my intention. It is important we share such information. Indeed thank you for posting this. I was initially confused by what I was reading in terms of the origin of the abstract itself, and trying to psych...

I am assuming this is a press release or formal announcement relating to John Derek Franklin being awarded his doctorate by Teesside University on this topic with the additional link to his actual thesis.

When I was an undergraduate over forty years ago, and certainly when I was in clinical practice, there was an understanding that when dealing with real life issues outside the lab the methodological difficulties in obtaining unambiguous answers given our current knowledge were potentially...