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Yes, what happened to good old fashioned Rogerian non directive counselling? I guess it is not currently fashionable. Early on in my ME I saw a counsellor in this mould and found it a positive experience, though we have no research evidence of the value of this in relation to ME. It could be...

It is looking like the US is making really good progress. From a distance it is looking like the ME and Long Covid lobby groups main problems there are dealing with apathy and disinterest rather than wilful denial. Hopefully this progress in the US can only help for those countries where both...

Though in theory I would agree with this, but not when those promoting and providing the counselling are the same people who are dismissing, deserting and gaslighting. Though I personally have had positive experiences of psychotherapy, only a cursory glance through patient forums indicates that...

Personally I find the most common triggers of suicidal ideation relate to interacting with benefits agencies. No amount of psychological intervention aimed at me would impact this. The only solution is to create a fair, honest and reliable benefits system.

Sorry as someone else pointed out to me ( I had known, but then forgotten), that Prof Chalder is not a clinical psychologist but came through as a nurse ( see https://slam.nhs.uk/national-services/our-experts/trudie-chalder/?fbclid=IwAR1yVmtSSWcIabUsUwFe4HlBHcp0XOvWG64mbygB7l2e3dRPGtl5vwg3bxk )

At what point does such behaviour become criminal. I tried looking at the UK clinical psychologists professional body website but could not find anything on professional standards (https://acpuk.org.uk/ )

Technically neuropsychology looks specifically at issues like cognitive function, the mechanics of perception, language production, taste, hunger, etc as distinct from mood or personality, though clinical psychologists may individually deal with both they are effectively very different...

Is it just me having problems with the term ‘neuropsychiatric’ as opposed to ‘neuropsychological’? For me the former is suggesting more than just such as cognitive and/or sensory issues, rather straying in to the realm of mental health. Surely this should be the realm of the neurologist and the...

I agree, in real life clinical studies the situation can be very complex, and although objective measures are infinitely preferable to subjective outcomes in situations were blinding is not possible, ultimately it may be impossible to avoid all ambiguity so convergent evidence from different...

I read over forty years ago, a research paper that attempted to compare different types of psychotherapy. It was dated then and I can’t remember if it was any good as science, but I rather liked the conclusion, which I am now probably grossly misrepresenting, but basically it was that there were...

What we can say is that such trauma is neither necessary nor sufficient for FM: not everyone who has FM has experienced such trauma, and not everyone who experiences such trauma will develop FM. So any plausible model linking trauma to subsequent FM will have to involve multiple causes...

Each section would then have sub sections eg 3 getting sufficient/appropriate food/nutrition when any physical activity severely limited, including chewing and swallowing (Note these are not meant to be fixed groupings as most people will be dealing with mixed needs depending on current energy...

It is so frustrating that virtually no one is developing a cumulative expertise or examples of good practice, in relation to the various aspects of ME. Food and diet are good examples of this failure. Certainly in relation to nutrition and diet, no one here in the UK is systematically looking...

At least it is good that we are seeing testing for orthostatic intolerance as default in some contexts. This can only help people better understanding the biomedical basis of long Covid and of ME.

Here in the UK my GP did refer me to an NHS community based dietician, who saw me at my doctor’s surgery. This was only after I had myself identified my gluten intolerance. We had just one session with general advice on achieving a gluten free diet. However I would argue that everyone with ME...

A very useful article, let’s hope it gets widely read.

@Michiel Tack, thank you another excellent read. Are you considering the possibility of publishing the whole series together in book form?

Thank you for pointing this out. I have got stuck in focusing on what the new guidelines may fail to achieve, and forgotten how big a step forward the draft represents.

I don’t know the thinking behind this specific survey, but my understanding is that surveys are useful to get general ideas and possibilities, which are then along with other evidence sources used to inform further structured research that gives hopefully more reliable answers.

Ignoring the theory element of the graphic, do people see it as a useful way of classifying symptoms? I have for sometime been trying to work out how to produce an exhaustive check list of possible ME symptoms, that in the first instance could serve as a self monitoring tool to record variation...