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Ooph! :ill::hug:

If I want to rest properly I put my earplugs in. I use them every night - otherwise IM or the dog will snore or suddenly snort and I'll end up wide awake. During the day, when I'm trying to rest, it means that if there's an occasional aircraft or a delivery van speeding down our tiny road I...

Imagine going to a mechanic with a because the alternator on the car doesn't work and having them tell you you just need to drive it more. Sure, in the normal scheme of things, driving your car charges the battery via the alternator but if the alternator no longer works..... you've no power to...

When being assessed by a psychiatrist this came up in the conversation. We discussed the BPS viewpoint & personality types & the inherent contradictions. Also that it would be so much simpler all round if we would comply, surely she could see that if we could, we would. Especially, those who...

Exactly. :thumbup: I'd love to see the cost / benefit analysis though. I don't know who the responsibility lies with these days - it was NICE & I'm assuming it still is but Public Health England might have a role in it. Where certain life changing medication or procedures are denied to all...

Also should have said - I've not tried the cooling dog mat yet but, if I put it on a carpet or on my bed, I'll be putting a large towel down underneath, just in case. I don't know if it will radiate any dampness down or cause any staining should the thing decide to leak any gel.

Yeah, should have thought of that. Sorry, busy day here yesterday. This looks pretty much like the one I bought. If memory serves I got mine a few years back from amazon -

They are gel filled pads that are wipe clean. The gel is activated by the pressure of the dog's weight. Unlike previous ones you don't have to keep them in the freezer and there is no charging etc. Mine doesn't give a weight limit, just a size and it's for extra large dogs so I would think it...

I echo some of the suggestions above. If you've got medication then use that. I couldn't handle zopiclone or other alternatives such as a sedating anti histamine. I use a slow release melatonin. Having said that - it's only an aide and I still sometimes struggle. Like @Leila, I have bought...

I'm sure I've mentioned before but it seems relevant here so I'll raise it again. I know of one lady who was assessed according to her needs. She was given a wheelchair, grab bars, bathing aids and the like. It meant that her husband could continue to work a full time job & she could safely...

At least they're not going through it thinking they're the only ones. Thanks to the internet they can easily contact others struggling through the same problems. They've also got us fighting their corner. That would have certainly have made a difference to me.

It's a nice idea in theory but, in practice & based on my own experience, I won't carry a card saying I have CFS or ME. Unless I know the person I won't even say I have ME. It's led to aggressive borderline abusive verbal attack. In my case the most notable was actually someone who turned out...

Oh, yes, the night sweats! Horrible! Also recognise the sweating when no one else is - dripping with sweat... Ugh! I really thought maybe it was very early menopause - I was just over 30 when I got sick, but then the occasional mysterious not sweating when everyone else was. There was the...

Yep. I've got quite the repertoire too. There's the hot over temperature sweat but also, when I am sliding into a PEM pit, the feeling really cold yet sweating.

:laugh: I vote for the first version - useful! :hug:

Sometimes I think we need to spell it out. :thumbup: We can easily forget that what's obvious to us might not be understood by everyone who reads these threads. Not everyone is familiar with all the shenanigans.

I was also advised to supplement with Vitamin D. My levels were on the border between normal & low. I honestly can't say I've noticed a difference. Maybe some symptoms would have been exacerbated or new ones might have developed if levels had dropped further. Maybe not.

And that begs the question - if we can see that, why can't mental health professionals & researchers? Or is it that they won't?

That is the difference between feeling better and being better and why objective measures are needed in research.

Sure it is more than possible. However, we don't know who will be harmed & who won't because they've spent the last 35 years with their fingers in the ears. They clearly know some people will be harmed because they lay all responsibility at the patient's door. Safety should be as important as...