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There are times when I can take a little exercise without any pain. At the time. Two or three days later I can be in a world of hurt. The exercise advice given is wildly over simplistic and demonstrates that these people have no idea of just how vast the gaping chasm in their knowledge is...

Apologies if you already have these. I don't "facebook". Do you have @Tom Kindlon for his work on Under Reporting of Harms in PACE among other things. Also, Robert Courtney and Alem Mattees? Edit..... Act of autocorrect

A cure. I would find that soothing.

I'm not a particularly vengeful person, I have better uses for my energy, but reading that piece it occurred to me to hope karma exists.

On the rare occasions I physically see people I tend to do the same. In theory I could just say I need to do ....whatever. In practice, then someone, possibly out of politeness, asks why and then I have to explain and use all the energy I have for the visit on that.

What I find very strange about all this - Nurses are women and are therefore more likely to suffer from a hysteria induced illness. Yet during both world wars and lots of conflicts there have been female nurses not very far from the front line, seeing horrific injuries, lots of death despite...

:hug: @JemPD. I think this goes beyond cruelty caused by ignorance. This is taunting and mocking the disabled. It is considerably worse than the type of bullying behaviour that we specifically teach kids not to do, at least they don't know better until they're taught. This is a person who...

From @Amw66's link :laugh::rofl::cry::banghead::banghead::dead:

So true. I have had difficulty explaining to people that even being driven somewhere in silence, in my own car, with my husband driving is a huge cognitive burden. The eyes still see, the ears still hear and the brain still filters and processes. It's the brain filtering and processing that...

From @Sly Saint 's post #36 above Erm.....didn't everyone play spin the bottle as teenagers or was it just an 80s thing where I grew up? Things might've stopped at a good snog, but wasn't that all that was needed?

No, unfortunately holidays are a secondary benefit of being able to work and the chronically ill can't just book a holiday where they can get a break from being ill. Being able to pay for holidays is also a secondary benefit of work that once again the chronically ill who are unable to work...

I'm pretty sure they do. I fill in the mental health section of the questionnaire in some detail to record the effects of impaired cognitive dysfunction. Although I make it clear these are a symptom of ME rather than a comorbidity because they are and the form is rubbish for eliciting...

I can understand that. Who wants to be bothering with what seems like political arguments when you just want to get better. Still, sticking your head in the sand won't help, far better to be forewarned than harmed. Many of the ME patients I have met who are less severely affected won't get...

Yep, that's what I figure. I take every opportunity to use the sanitizer as well, just in case I forget & touch it. Also, it's hard enough to walk "normally" & in a straight -ish line when I'm paying attention. I've noticed a few people fiddling about with their masks and not looking where...

I have to say, I've ventured out 4 times now with my masks. It isn't nearly as bad as I thought it would be. I hate anything up around my neck and face unless it's quite loose - polo necks, tightly wrapped scarves, hoods drawn tight etc. I have a small supply of washable masks and a box of...

Ah now, the b@****** just didn't want to get better. :whistle: [Sarcasm]

GIGO. Again. Is it really not thought necessary to throw in a course module on critical thinking or how to evaluate "evidence" before you go round recommending treatments? Though it's a trainee and this is the treatment "preferred" by the system the conclusions are hardly surprising.

IM's employer is now starting to "encourage" much of the work force back to work. Apparently HR have stated that workers currently working from home can't be forced to come back in so they are being asked. Difficult situation - some are fed up trying to work at home, some prefer it. However...

I find that PEM is the biggest cause of disrupted sleep for me. Then the sleep disruption means it takes much longer to recover from PEM so sleep continues to be disrupted until I clear PEM. However, if I have been active (for me, not a normal person) then having a lie down and allowing myself...

My view (learned cynicism) is that when they say individualised person centric care it is to be deliberately unclear. It makes it sound as though the care is tailored to the individual and treatment/drugs will be given or changed depending on how the person reacts. That sounds like a good...