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  1. shak8

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    Well maybe if Medicare for All is adopted here in the US, we'll have to shuck out this psych-fraud research funding. I do love the idea of exposing the waste of money given to this type of research. Hmmm....how to approach that?
  2. shak8

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    In another article, perfectionism (studied for 50 years!) is associated with anxiety, depression and self-doubt. In other words, it's a close synonym to STRESS. The article https://www.tandfonline.com/doi/full/10.1080/10615806.2017.1384466?src=recsys
  3. shak8

    Psychology & Health: Perfectionism and beliefs about emotions in adolescents with chronic fatigue syndrome and their parents (2019) Chalder et al.

    I think these "researchers" suffer from ethical-basic intelligence-and obsession with finding fault disorder, a perfectionism pathological and menacing.
  4. shak8

    How Chronic Illness Can Influence Suicide Risk

    Seems to be confusion in the medical literature about the MUPS definition. It is a very broad category whose reason for being seems to be cost-containment and what to do with the patient. The result is always: refer to psychological treatment. Woe to said patients who receive less than optimal...
  5. shak8

    Assessment of Post-Exertional Malaise (PEM) in Patients with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). Holtzman et al. (2019)

    Yes, this is the most useful role of the survey. The causative factor(s) aren't precisely known. So, at least the wide-ranging definitions of PEM are an opening to reasses and redefine PEM with an eye to discerning differences clinically which may point to different causative factors or innate...
  6. shak8

    Feasibility RCT of cocoa for fatigue in MS (2019) Coe et al

    Droste's cocoa with skim milk and no sugar. Elevates mood and cognition (for me). Makes for some happiness whenever swallowed. Yum.
  7. shak8

    Open Chronic fatigue syndrome participants wanted for aquatic exercise trial Published 22 February 2019

    Previous and current research study has self-selected participants. So folks with mild ME sign up as they show up as scheduled. Certainly not generalizable to all ME people.
  8. shak8

    Open Chronic fatigue syndrome participants wanted for aquatic exercise trial Published 22 February 2019

    There was a previous pilot study done. Guess those "research subjects" were self-selected. In other words, they had minimal to mild ME and could get to the pool as directed and on schedule.
  9. shak8

    Book Review: CBT: The Cognitive Behavioural Tsunami

    Found this today, see pages 49-51. Veterans Administration (USA) Therapists' Manual of CBT for Chronic Pain. https://www.va.gov/PAINMANAGEMENT/docs/CBT-CP_Therapist_Manual.pdf Sure, there are people who need some nudges to help themselves. BUT, pages 49-51, the same old crap take by non-pain...
  10. shak8

    NY Times: Five Things I Wish I’d Known Before My Chronic Illness [principally about IBD]

    No, not a rectocele. A surgically made pouch because of getting rid of much of the rectum due to the severe inflammatory process there (and elsewhere in the colon).
  11. shak8

    Book Review: CBT: The Cognitive Behavioural Tsunami

    I perused the transcript of the Australian video. It's the same rubbish: you can train your brain to stop feeling pain. that the brain is plastic therefore you can change pain. Again, show me proof that this works. My pain has been the same annoying, life-changing deal since 1998. Just like ME...
  12. shak8

    Book Review: CBT: The Cognitive Behavioural Tsunami

    I can and have (yesterday in 13 degree C induced pain) cheerleaded myself through some tough pain moments. "Don't focus on it." "You'll be home soon and can get heat to the area, rest, take meds." I would submit that every pain patient already employs CBT cheerleading to herself. Sure, there...
  13. shak8

    NY Times: Five Things I Wish I’d Known Before My Chronic Illness [principally about IBD]

    Friend of mine (ex-friend really) has ulcerative colitis (belongs to the chronic inflammatory, crohn's family). Her risk of bowel cancer is 37x normal. She has immune attacks on leg vessels, random, who-knows-where next attacks. So, not well controlled. Also has scar tissue in rectal area which...
  14. shak8

    MYRIAD - My Resilience in Adolescence project UK

    I wouldn't want mindfulness completely divorced from its religious/philosophical underpinning. As Dr. Farhad Dalal points out in his critiques of Mindfulness Based CBT, that it is being used to try to prevent PTSD in American soldiers. In other words, who gives a toss about the Buddhist...
  15. shak8

    Book Review: CBT: The Cognitive Behavioural Tsunami

    Watched most of it. I want to visit the CBT and Mindfulness-Based CBT studies in pain reduction to learn how to dissect them. I am somewhat fearful of the intersect of CBT and MB-CBT for pain reduction for sufferers taking opiods for pain (such as myself). Thanks for this!
  16. shak8

    Cognitive Impairments in Fibromyalgia Syndrome: Associations With Positive & Negative Affect, Alexithymia, Pain Catastrophizing.., 2018, Duschek et al

    Just one more thing. On the second page of this is an instrument used to measure the degree of catastrophizing. (On the first page is the Widespread Pain Index (used in fibromyalgia research as an instrument to remove those patients with low widespread pain index scores from the diagnosis of...
  17. shak8

    Ambroxyl for fibromyalgia: open-label pilot study (2017) Martinez Martinez et al - neuropathic pain

    Mexican researchers studied this drug. https://link.springer.com/article/10.1007/s10067-017-3664-z Recent article here: https://fibromyalgianewstoday.com/2017/05/08/ambroxol-shows-potential-for-managing-fibromyalgia-pain-pilot-study/
  18. shak8

    Cognitive Impairments in Fibromyalgia Syndrome: Associations With Positive & Negative Affect, Alexithymia, Pain Catastrophizing.., 2018, Duschek et al

    "They should just shut up." Love that. Because I worked as a nurse and a tad in research, I tend to overlook glaring fissures in researchers' work. Not any more. And as my son said, "Psychology isn't science."
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