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Could we include the harms done to ME as whole and to Long Covid as another adverse consequence of the Lightening Process, that is if Paul Garner did have input from one of the Norwegian practitioners?

Though I agree, indeed so little yet has any evidence base in relation to ‘long Covid’, we do need to be making a noise about there being no evidence for exercise being a universal panacea for post viral conditions of any sort and that pointing out people experiencing Post Exertional Malaise...

The British MEA say they have reports of people’s ME being significantly worsened following Covid 19 and this applies to most people with ME who have had Covid-19. However what I have seen gives no idea of the number of reports this is based on and what percentage report this ongoing...

This makes no sense at all as people from higher priorities than those currently being rolled out here in the UK who were missed first time round by the call out system can still get themselves added for immediate vaccination. Certainly people who are aged over 65 years who have not been...

Might it be worth taking the information re additional risks for ME as a long term neurological condition in the British ME Association draft letter (see link in the posts above) and sending it to your GP, local health service provider or MP requesting higher priority.

In the UK ME is not specifically named in the vaccination roll out priority, but theoretically should be considered for higher priority under group 6 which includes various conditions including ‘long term neurological’ conditions. With these unspecified long term neurological conditions doctors...

I am not aware of any formal reports to the Police. When Horton claimed his wife had received threats on their house phone, he seemed to avoid answering the direct question of whether or not they had reported this to the police for formal investigation. Similarly when Crawley claimed she had...

Often these phrases are euphemisms for something else. In the UK’s NHS ‘efficiency savings’ actually means ‘budget cuts’, the rationale supposedly being that if you cut people’s budgets they provide exactly the same service at less cost. As the cuts are fed down the management structure, they...

One problem evaluating supplementation is distinguishing between correcting imbalance and maintenance doses. I regularly go into B12 deficiency, and when in deficiency notice an improvement in my overall ME symptoms following a B12 injection, however subsequent injections have no subjectively...

Given the alacrity of some of the GET/CBT defenders to slander and defame and the willingness of some journalists to repeat this unquestioned, it is import that there is no scope at all for them to twist the truth on issues like funding sources.

Interesting that previously there was the idea that other SARS virus related epidemics resulted in relatively high percentages of people developing ME, higher than you would expect from EBV infections. I forget my source, but using one set of figures relating to a previous SARS epidemic, a very...

For me the distinction between fatiguability and PEM is of central importance and can be widely missed by researchers. My definitions are something like: Subjectively the results of fatiguability are directly related to the triggering activity and are more or less immediately following on from...

My understanding is that all comments would be equally considered, but that only stakeholders’ comments would be published in full, other comments would only be summarised in the final document, which may mean some will feel they were not given the same weight if they are dissatisfied with the...

Thought once I wrote this that I would be asked, and am not sure how reliable my memory is. I thought I had seen a couple of submitted comments, but on reconsideration this may be confabulation. On reflection I suspect what I have read was the various published letters, ‘editorials’ and social...

Sad that my first thought is to question if something underhand is happening. Of the feedback to NICE I have seen, that basically supporting the rejection of the current BPS approach and even arguing for more radical change than in the draft, particularly from patient groups, was so much...

Also in the surveys we can not control for extraneous associated factors. For example for me getting the first vaccine injection involved leaving the house for the first time in over six months, getting somewhat euphoric (not sure if it was going out in good weather, meeting actual people other...

I am quite happy to contribute to any crowd funding to cover the cost of the boat charter transporting him to the said desert island.

Really enjoyed (if that is the right word) the latest Blog on asthma. Looking forward to more in the series.

To perhaps be guilty of mansplaining, I think it is important we demonstrate as much as possible the gender biases of the medical profession to ensure better management of conditions that impact on woman more than men and also to avoid the harms caused by MUS misdiagnoses. As a man I believe I...

It used to be a condition of the Home Office licences for animal research here in the UK that the animals were destroyed at the end of their research usefulness, I don’t know if that continues to be the case now. This, at least in the past, meant after the main research was done, that more...