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Thank you I just saw the post ICU syndromes and missed the post viral syndromes.

Is it worrying that they make no mention of post viral fatigue or ME like symptoms?

Presumably there is nothing inherent in either condition that would confer immunity to the other, so one would expect that the incidence of someone with one condition getting the other is at least the same as that of the general population. However, given ME is currently a diagnosis of...

@cassava7 thank you for sending this concise and very much to the point response.

People take as their word roots an arbitrary point in time, even Roman and Greek words came from somewhere. Though we can speculate about possible original Indo-European or Sino-Tibetan or Afro-Asiatic parent roots for some words, this is still an arbitrary point in time and I suspect only a...

Surely every modern day usage of words represents a corruption of their root meanings if one goes back far enough, though we may not have written records that go back far enough to fully delineate this for all words. In general words evolve rather than spring into being fully formed. I would...

And if you look at orthostatic intolerance rather than just those that meet the diagnostic criteria for POTS the potential for heterogeneity becomes even greater.

We have some anecdotal reports of harm from participants in a number of the relevant trials that raises the possibility that they did not have adequate means recording any harms or of establishing why people dropped out at the various stages. Further the UK specialist services providing GET are...

There is potential confusion about onset, even with those whose ME onset is associated with an acute condition. In one sense I could say my onset was between 2pm and 2.15pm on a specific date twenty eight years ago, this was the onset of a bad headache that seamlessly became glandular fever...

Given that some people with Long Covid are improving following the vaccination injection and others are not, are we seeing a similar pattern of variation between individuals to that we see in ME?

A clear and concise overview that should be widely shared.

My ME onset was initially associated with the EBV virus, but after a number of years was in apparent remission. However a major relapse was associated with a bad dose of influenza over the millennium New Year, which with some fluctuations has left me moderately to severely effected since. I...

If some thing does not work, how can it be cost effective? Give there is some evidence that UK specialist ME/CFS services primarily providing CBT/GET result in people working fewer hours and claiming more state benefits is this ‘research’ completely barking up the wrong tree.

It has always puzzled me that I am not more unfit than I am, that I have not lost more muscle mass or put on more weight. In the first twenty years or so of my ME when I still had periods of relative remission, if I was well enough to do things, I could do things approaching my premorbid level...

Apologies, I had misread information from the MEA and it was only one Welsh Health Board so far that supports automatic inclusion of ME in the at risk Group 6 see https://meassociation.org.uk/2021/02/vaccine-priority-list-latest-on-our-actions-in-england-wales-and-scotland/#Wales

Feeding/eating problems is such a potentially stressful issue for parents. Feeding your child is part of your identity as a parent. When I worked with swallowing issues with adults with cerebral palsy, it was obviously necessary to work closely with parents/carers but at times you needed to...

Although I can see the rational for trying this, it is highly possible that PEM could be triggered by such electrical stimulation. So people with this symptom could end up with their condition being worsened by such intervention.

Sorry, something of a red herring. We have been having gloriously sunny weather here the last few days and yesterday I went out for the first time in six months to get the first injection of the AstraZenica (Oxford) vaccine, it was sheer joy and I began to realise (if we don’t make a big mess...

Here in rural Derbyshire and in North Staffordshire provision has been made through local GP practices for people unable to attend the centres to be vaccinated at home. This is being organised at a very local level by GPs not the large NHS directly run regional centres. So @alktipping it might...

In England it seems to vary from GP to GP as to whether people with ME/CFS are classified in Group 6 or not. Group 6 includes those with long term health issues many of which are specifically named. Group 6 is prioritised after people aged over 70 and before those age over 65? The guidelines do...