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Those desperate anti science patient activists that are bullying the poor BPS researchers, they even managed to disguise themselves as respected PhDs and Proffessors at major academic institutes. The lengths they will go to, concealing their major disabling illness, studying and researching for...

Stating the obvious for readers here: Can someone please inform physicians that we have a 'new age of patient autonomy' particularly in relation to ME/CFS, to those misdiagnosed with the bizarre unscientific psychiatric diagnosis of MUS ('medically unexplained symptoms' syndrome) and the...

Rather like the PACE claims to be cost effective, this only has any meaning if the treatments actually work. Certainly [as] with ME it is unlikely that any MUS approach could provide an effective treatment as it is just plain inappropriate. The treatment may drive patients away from the medical...

This on one level tells us nothing that does not seem obvious, high levels of pain are associated with lower quality of life and lower mood. But more importantly correlation does not necessarily mean causation, I have more pain when my ME is bad but also I have lots of other issues when my ME is...

Brain not working enough to attempt to participate in the survey today, but, when I thought how I would rate would rate supplements I have taken in the past, in retrospect it is hard to distinguish those that I have taken the results of which I could support with specific anecdotes relating to...

On a more serious note it is absolutely shocking the number of NHS specialist ME/CFS Services that host 'therapists' fixated on 'conversion' theories of ME that pressurise people with ME to relive as many historic traumas and stressors as possible. Presumably they do not record incidences of PEM...

A profoundly worrying article, I couldn't face reading it all the way through at present, will have to brace myself to face it. However I can unambiguously say I have never experienced sexual abuse or sexual harrasment, indeed I have no recollection of any childhood traumas beyond life's normal...

Although I don't think I have delusions, I do sometimes find myself confabulating, unhelpfully filling in gaps in my memory with inventions without being aware I am doing so. Memory problems are regularly reported in relation to ME, but I have not come across mention of associated confabulation...

Even better news! This makes much more likely the long term possibility of Cochrane actually coming up with something in relation to ME that is not only not harmful but also useful. [Edited to correct grammar. So excited I keep coming back and rereading this thread.]

Exciting times. Hopefully we see more good excitement and less bad excitement.

They acknowledge a physical basis of ME, but like Prof Crawley have decided cortisol is a prime factor. She believes we can be cured by improved sleep hygiene in addition to the usual GET/CBT, but Aberdeen seem to have linked this to a disordered stress response which sounds like yet another...

So the predators have spotted our sickness behaviour and struck. The predatory psychologists and psychiatrists have identified a group of people made vulnerable by their sickness and used us as a stepping stone in their empire building.

There an answer for every type of behaviour. If you don't do things that might cause a crash it is 'avoidance' behaviour, if you do things that cause a crash it is 'all or nothing' behaviour, meaning there is an answer for any behaviour regardless of any internal logical consistency. Any...

In the reported case study, is it not internally inconsistent to refer to a condition as a 'functional disorder' at the same time as believing FMT provides a 'good medical therapeutic intervention'.

I had a short period of IBS following salmonella poisoning some years befor the onset of ME, and then an apparent total remission. However it later reappeared in conjunction with the onset of my ME. The relationship seems complicated, sometimes something like diet (eg chocolate) triggers a...

A null result in this study may not rule out a disturbed gut flora being implicated in the symptoms of ME. If the fecal transplant does not restore the microbiota balance are there other factors involved in perpetuating the imbalance? On a totally unscientific and anecdotal level, when I have...

In theory it looks an interesting study, but in practice I agree with @strategist that the Chalder Scale is at best very problematic. The recent Vink and Vink-Niese paper, though considering the studies used in the Cochrane GET review, has a very helpful section on the problems with the Chalder...

Re reading this retrospective registration of this feasibility study, the 'secondary study design' is described as a 'randomised controlled trial'. Interestingly the subjects are their own controls, being assessed over different pre treatment periods without intervention and 'randomised' to...

The registration for the study contains the phrase "There are no anticipated risks involved with participating in this study". Will this mean that the researchers are repeating the trend in [the parallel] ME/CFS GET studies of failing to adequately record any harms or adverse reactions, clearly...

Do we know if the problems/issues that existed when this group was initially set up have been resolved? Obviously the Board members mentioned are reassuring.