I am all for names that people in general don't understand, as it means they have to ask what the word means. So many terms associated with ME seem to the lay (or even some professional) audience to have an obvious meaning which in practice results in misunderstanding.
The obvious example is ME...
An important issue that is regularly debated here but needs to be understood by a wider audience, thank you @dave30th.
Having put some effort into my comment on this on the Virology Blog, to feel I am getting full value, I have copied it here too, even though it is only repeating what many have...
The emphasis on PEM as a defining characteristic of ME is used in the selection of research subjects, but it is not generally the object of most biomedical research. So though it is used to direct researchers as to who to look at, I don't think it is restricting what they look at. Even when...
@Samuel, I am struggling to read your post. This is partly my cognitive problems, but also I think when you copied and pasted it here the original formatting was lost. I hope you don't mind me trying to reformat it in order to try to understand it. Here is my attempt:
My apologies if this has...
It is good to see research challenging the sleep police.
There is some evidence that aspects at least of our sleep patterns are cultural, for example there is the suggestion that in Europe at least the previous norm was not 'go to bed, fall asleep for eight hours, then get up' but rather 'sleep...
I have signed this petition though I have mixed feelings about the idea blocking speakers at university events.
Though free speech is important, we must also draw the line at actions that cause real harm to people. Also the BPS crew have consistently ignored and attempted to suppress views that...
Some years ago I tried VegEpa for a number of months, perhaps six months or more, can't be sure of the details now.
It was at a time when things were going relatively smoothly, but if there was any effect it was not dramatic. I stopped because I was not convinced it was having any effect on my...
I tried to leave a rating, but it it doesn't seem to accept it. It says there was only one rating when I look and that that one rating has an average of four stars.
It is also reporting no comments have been left and I can not find a way to leave a comment.
(Am using Safari on an iPad)
My understanding is that there is some evidence that very gentle exercise helps with fibromyalgia in isolation, but I have not read any of the studies and have no idea if they are any more reliable than the evidence for exercise helping ME.
However it does sound like this lumping together of...
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