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  1. Valentijn

    Simon Wessely Research & Related Quotes

    BIAS AGAINST MENTAL ILLNESS AND PSYCHIATRY The self-diagnosis (and perhaps medical diagnosis) of "ME" or "postviral fatigue" appears more influenced by views on physical or psychological causation than any particular symptom. Wessely S, Powell R.The nature of fatigue: A comparison of chronic...
  2. Valentijn

    Simon Wessely Research & Related Quotes

    TREATMENT Part II The main goal of cognitive behavior therapy was to help patients improve activity levels and quality of life, rather than overcome symptoms of the illness. Deale A, Chalder T, Hussain K, Wessely S. Long term outcome of cognitive behaviour therapy versus relaxation therapy for...
  3. Valentijn

    Simon Wessely Research & Related Quotes

    TREATMENT Part I Cognitive therapy helps the [CFS] patient understand how genuine symptoms arise from the frequent combination of physical inactivity and depression, rather than continuing infection, while a behavioural approach enables the treatment of avoidance behaviour and a gradual return...
  4. Valentijn

    Simon Wessely Research & Related Quotes

    CAUSE AND PERPETUATION Part II . . . there is no specific underlying disease process. Reid S, Wessely S. Chronic fatigue syndrome. Conn’s Current Therapy (ed Rakel, Bope). Saunders, 2002, 110-113 [From Table] Perpetuating factors in Chronic Fatigue Syndrome: Depression and anxiety, Lack of...
  5. Valentijn

    Simon Wessely Research & Related Quotes

    CAUSE AND PERPETUATION Part I ...[CFS] symptoms are perpetuated by a cycle of inactivity, deterioration in exercise tolerance and further symptoms. This is compounded by the depressive illness that is often part of the syndrome The result is a self-perpetuating cycle of exercise avoidance...
  6. Valentijn

    Simon Wessely Research & Related Quotes

    PROGNOSIS AND OUTCOME Outcome depended more on the strength of the initial attribution of symptoms to exclusively physical causes. . . . Butler S, Chalder T, Ron M, Wessely S. Cognitive Behaviour Therapy in the Chronic Fatigue Syndrome. J Neurol Neurosurg Psychiatry 1991; 54; 153-158 . . . the...
  7. Valentijn

    Simon Wessely Research & Related Quotes

    The PACE trial is a very large (n=640) and well conducted (1 year follow-up rate of 95%) multicentre randomised study, funded by the Medical Research Council, Department of Health and Department of Work and Pensions, and ironically also the Scottish Chief Scientist’s office, and one of whose...
  8. Valentijn

    Trial By Error: The Crawley Chronicles, Continued

    Didn't they complain to Coyne's university (Groningen) as well? Seems to be quite a habit they've got going, if so ... trying to interfere with the employment of Coyne, Geraghty, and now Tuller. Basically intimidating any academic who questions their methodology.
  9. Valentijn

    Menon - Mitochondrial Modifying Nutrients in Treating Chronic Fatigue Syndrome: A 16-week Open-Label Pilot Study

    I suspect that nutraceutical formulations are just seen as the easy way to make some money, along with a nice patent. A lot of researchers seem incapable of doing quality work, so they're fantasizing about making a grand discovery and quickly retiring to a life of luxury. They lack the skills...
  10. Valentijn

    USA - Mayo clinic

    The goal is to increase activity, so it's GET. It just responds to symptoms instead of instructing patients to push past it. It certainly is not pacing, though it sounds like some clinics call it pacing. I think it's the approach usually used by psychosomatic clinics in the real world, versus...
  11. Valentijn

    USA - Mayo clinic

    Did you get that in writing? :D
  12. Valentijn

    News from Scandinavia

    There are probably more accurate terms than "fatigue" for that symptom and most others.
  13. Valentijn

    News from Scandinavia

    Pretty sure I've seen fatigue specifically mentioned somewhere as being an extremely common symptom in very many illnesses. Wikipedia says "Medically, fatigue is a non-specific symptom, which means that it has many possible causes and accompanies many different conditions." It's also listed as...
  14. Valentijn

    News from Scandinavia

    No more than in most diseases, I'd say. It's certainly not a central or important symptom. At most it's a starting point in the diagnostic process due to a general failure of doctors (or new patients) to recognize PEM.
  15. Valentijn

    New York Times: New Recognition for Chronic Fatigue

    Yeah, it only makes sense if accepting the premise that patients are causing their symptoms ("fatigue") with inappropriate behavior.
  16. Valentijn

    Video: Professor Warren Tate's Update on His Research into ME/CFS - 11th November 2017

    Yes, pretty much every "central" or brain-based hypothesis completely fails to account for most ME symptoms. They only make it look plausible by focusing on pain, fatigue, etc.
  17. Valentijn

    Approaching recovery from myalgic encephalomyelitis and chronic fatigue syndrome (2017) Devondorf, Jason et al

    Well, it's supposed to be about expert definitions and opinions of problems. If they don't know what the symptoms of ME are or think it's a manifestation of depression, they probably aren't aware of any of the research or other evidence, and they certainly aren't experts :-P Hence the...
  18. Valentijn

    Approaching recovery from myalgic encephalomyelitis and chronic fatigue syndrome (2017) Devondorf, Jason et al

    Full text is at https://sci-hub.bz/https://doi.org/10.1177/1359105317742195 It takes a nice swing at PACE's assessment of recovery: Some of the expects interviewed don't sound very useful, such as seeing patients only once typically. That's how BPS fatigue clinics operate, not real...
  19. Valentijn

    News from Scandinavia

    Seems like a pretty reasonable critique. Though this bit suggests he's not particularly familiar with what ME/CFS is or isn't: But I don't expect most people to know that chronic fatigue isn't a typical symptom in ME/CFS either :-P
  20. Valentijn

    New York Times: New Recognition for Chronic Fatigue

    The activity on forums like this one suggests that most patients who are posting much are more toward the housebound end of the spectrum than the able-to-work end of the spectrum. When people are working, most of their online activity comes in the evening or on the weekends. We have the...
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