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  1. Valentijn

    Junk science publisher ordered to stop ‘deceptive practices’

    Interesting that it isn't about the quality, review process, etc, but rather about deceptive practices in getting researchers to submit articles: Their defense is "fake news" :cautious:
  2. Valentijn

    Sickness behaviour – useful concept or psycho-humbug?

    Psychogenic types tend to favor the term "illness," and they define it to mean someone's subjective experience of feeling unwell.
  3. Valentijn

    ADHD Drugs for Chronic Fatigue Syndrome - How Well Do They Work?

    Patients were selected with Fukuda criteria, and patients on the drug significantly worsened on SF36 role physical and role emotional subscales. The authors tried to cover that up by using medians instead of means for only those two outcomes. Nearly 30 comparisons were made, with no apparent...
  4. Valentijn

    USA - Mayo clinic

    The page is indeed copied (probably automatically) from Mayo: https://www.mayoclinic.org/diseases-conditions/chronic-fatigue-syndrome/diagnosis-treatment/drc-20360510 I've emailed them in the past with no progress, so trying a more public tweet:
  5. Valentijn

    ADHD Drugs for Chronic Fatigue Syndrome - How Well Do They Work?

    If only we had a condition defined by fatigue :rolleyes: I think the author is being extremely irresponsible to promote the use of stimulants, since the evidence for their use in ME/CFS is absolute junk.
  6. Valentijn

    Forward ME Group Minutes – 17th October 2017

    There are some who seem to make a habit of sneering at the supposedly ill-informed masses in an attempt to make themselves look more enlightened. They get a bit cranky when it turns out that those masses actually know more about the subject matter :rolleyes: It's safer for them to play the...
  7. Valentijn

    European Parliament questions

    I hate it when groups make it sound like ME is all about Lyme or pretty much the same thing as fibromyalgia. How can anyone answer a question which itself contains assumptions that can't be accepted? Any idea who asked these questions?
  8. Valentijn

    Forward ME Group Minutes – 17th October 2017

    Why was Max Davies there at all? ME is not in the realm of mental health, no matter which euphemism is being used to sound less like an ignorant jackass. And Max Davies has a history of endorsing the view that researchers don't want to get involved with the "furore," "abuse," and...
  9. Valentijn

    Article: What’s worse? Doctors who believe homeopathy or just use it for placebo effect

    There might be a different use of terminology, in the paper or in the understanding of the doctors. In the Netherlands, anything with natural ingredients often gets labeled as homeopathy. Basically, it includes naturopathic substances, rather than just truly homeopathic treatments. My...
  10. Valentijn

    A Novel Nutriceutical Treatment of ME/CFS, 2017, Comhaire

    Maybe I'm just being unduly pessimistic, but I'm starting to think that people involved in research which promotes specific supplement blends aren't interested in good trial design any more than the people whose research promotes specific psychosocial therapies :unsure: I'm very much looking...
  11. Valentijn

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    I don't know, "leathery screw", and "rawest lechery" might get someone into a lot of trouble :oops: And those are nothing compared to the infamous "wet celery rash" :D
  12. Valentijn

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    Perhaps a brave new lawyer, Try Sewer Leach, will appear out of thin air to defend Saint Esther's honour? PS - "Esther Crawley" has some truly awesome anagrams :D
  13. Valentijn

    Tymes Trust - No reported harassment of staff at Bristol University

    I prefer a trebuchet, with one chance to get it right :emoji_golfer::emoji_dizzy::emoji_dragon: We can call it "you lie, you fly" :cool:
  14. Valentijn

    Tymes Trust - No reported harassment of staff at Bristol University

    The problem is with being able to prepare for dealing with outright lies. If statements made by one party have no basis in reality, there's been no opportunity to fact check their claims. It gives the liar quite an advantage, because the only defense to a new lie is going to be "I don't know...
  15. Valentijn

    Esther Crawley

    Motive is the reason for doing something. Intent simply means the action was volitional - that someone wasn't forced to do something against their will, involuntarily intoxicated, etc.
  16. Valentijn

    Tymes Trust - No reported harassment of staff at Bristol University

    Or we can just tell them to fuck off (preferably in politer terms) when they make baseless accusations, instead of tiptoeing around and acting like we've done something wrong :-P
  17. Valentijn

    How near are we to a diagnostic biomarker? What is it likely to be?

    Agreed. It should be about the research being produced, not celebrity status.
  18. Valentijn

    Remove air fresheners from disabled toilets in Sainsbury's UK

    I say remove them from all public toilets. They smell bad and you can still smell the underlying odors anyhow. Air "fresheners" are just used to cover up poor sanitation and insufficient ventilation.
  19. Valentijn

    Phase III Rituximab Trial - News

    So "undue hype" must refer to simply conducting any biomedical research, because the authors of this study were about as anti-hype as someone could get. But I doubt that tweeter has a problem with the actual mid-trial and other hype from PACE :-P
  20. Valentijn

    How near are we to a diagnostic biomarker? What is it likely to be?

    She's primarily using 23andMe data, so it's unlikely to find anything.
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