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The mito clinic says no, based on my MTDNA being normal. But mitochondrial dysfunction can be caused by other genes which contribute to mitochondrial functioning, and external or acquired factors. Based on symptoms, I'm about 99% sure that I have some form of mitochondrial dysfunction, but no...

Rule 11 applies to discussing the functioning and politics of all ME/CFS patient forums.

Lactic acid generated from muscle use (or certain meds, and maybe a different form from digestion as well) can end up in the spinal cord and brain. I know that happens with MELAS, though I have no idea if the mechanism for it is specific to MELAS. Regardless of the source, my arms burn first...

I doubt they've changed much since then. Likely they found that there was a profit to be had from being a revolutionary communist back in the day :-P I suppose there was a similar perception that you could trust communists not to be pro-corporate interest, just like you can trust a "science"...

I'd fire him. He might be a nice guy, but patients need good doctors :-P

They're pro-corporation and pro-government, since that's where they get their money from. More specifically, they promote whichever institutions have "donated" money to them.

There are some symptoms pretty common in mitochondrial disease which aren't common in ME, such as diabetes and episodes of hemiparesis. With a mitochondrial disease like MELAS it's known that lactate accumulation can cause serious problems, so presumably any exercise is undertaken with the...

Haven't there been some other statements likely involving Crawley, purportedly on behalf on an institution, which seemed to be written by her? Something to NICE about the CFS review, where "their" opinion had some typos that suggested it was initially written as the opinion of a single person.

Yes, public schools tend to be pretty horrible when it come to accommodating anything new or different. In the US, I think most teachers would immediately label it a "distraction" to the other children, and forbid it from even being trialed. Nice idea, but I think the bigger problem is elsewhere.

Has he tried protein powders, such as hemp, pea, or rice protein?

The same Puri who was a lead author from the older paper about just the single Perrin tender spot, and has had his fish oil promoted by Perrin, was Reviewer #1 of this new diagnostic paper :expressionless: It's possible that some of the other reviewers are dodgy too.

Yes, but he relies on 1 and 2 to sell his therapy. If he can prove that lymphatic massage cures ME (he hasn't), he should stick to that. People want an explanation, especially with lack of evidence for the efficacy of the therapy, so he has created one which provides a false sense of a...

Actually the 100% bit you quoted isn't part of the paper at all. I'm guessing that was your added comment? Because it isn't 100% indicative of ME, according to the study. They merely found 100% specificity in a small and unblinded study, which also had a big problem with controlling for...

Again, he's grossly overstating the results to conclude that the tender point is 100% indicative of ME. I don't doubt the tender point exists (many of us have it), but it's far more likely that it's the result of inflammation or another broader category. Why would that spot only be tender for...

My main concern is that he seems to be going about it backwards, as the BPS practitioners do. He starts with the premise that his particular specialty is the cure for multiple diseases, and the explanation of pathology to support that cure is then invented with little or no evidence. Why is...

Damn, I guess this means that we can't take the word of royal German veterinarians as proof that homeopathy works :rolleyes:: I don't completely agree with this regarding the size of the placebo effect. If it's deliberately exploited as part of the treatment process, it makes sense that the...

The collection of published PACE papers ended up having dozens of co-authors, from what I recall. Any British academic attacking PACE would also likely be attacking a co-worker from their own institution, and risk associating their own institution with the scandal of supporting poor research...

It has to involve a halogen (basically fluorine, chlorine, bromine, or iodine), and of those it looks like only bromine and iodine have organic compounds primarily sourced from a variety of red algae, asparagopsis taxiformis. Organobromines and organoiodines can be used to manufacture quite a...

@alicec ?

Looks like a study designed to promote a product. And the editing of the article is atrocious. They're getting "treatment refractory" patients from a CBT/GET clinic for which those treatments didn't work ... which strongly implies that the author thinks those therapies are effective in...