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  1. rvallee

    The relationship between types of life events and the onset of [FN] (conversion) [D] in adults: a systematic review.., 2021, Carson, Stone et al

    But they'll keep saying it anyway, it's even the first thing they say in the abstract, they repeat their hypothesis as a fact. Because they don't even trust their own research unless it says exactly what they wanted it to say. There are other papers that suggest otherwise, and as long as they...
  2. rvallee

    New Zealand: Covid-19 vaccinations for people with ME/CFS

    I think the idea may be that vaccine mandates are becoming more common, with consequences for those who do not comply, and to make it a valid justification. But I just can't imagine that exemption actually being taken seriously by health care services. It would be a nice idea but has no chance...
  3. rvallee

    BPS attempts at psychologizing Long Covid

    Meh. Just skimmed and found those gems in the same list: They are simply not listening, at all. Or paying attention. Not even a bit. And yeah there's Alan Carson, where I stopped, so they are just so completely out of their depth it would actually funny if it weren't for the consequences, and...
  4. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Hmm... bummer. It was from a GP running a Long Covid clinic (at Johns Hopkins, I think) saying they are having problems finding physicians to work there because LC simply isn't taken seriously enough, hardly anyone's interested. The first of 2 is still there... But I just noticed this was from...
  5. rvallee

    The biology of coronavirus COVID-19 - including research and treatments

    It's absurd that this late into it, there is still a majority of physicians who still cling to the idea that people can't get infected more than once, or that subsequent infections would be rare and guaranteed to be benign. Or pretend to, I can't tell at this point. The entire premise of herd...
  6. rvallee

    News from France

    It seems that some French long haulers who were hospitalized are being sent ads to participate in a mindfulness thingy by the health services. But wait, there's more: they're charged €400. Because it's not insulting enough, asking people to pay for their own gaslighting is... well, typical, frankly.
  7. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Without addressing the decades of lies overt discrimination, and plain failure, creating a state of hostility to this entire category of disease, this will be a serious problem, it could even derail efforts right at the start, fueling even more denial of the "we don't really see those patients...
  8. rvallee

    Management of Long-COVID Postural Orthostatic Tachycardia Syndrome With Enhanced External Counterpulsation, 2021, Varanasi

    N=1 with a highly fluctuating illness makes this uninterpretable, adding to that the high % of natural recoveries making any attribution basically reaching. If the "placebo" effect were anything but errors of measurement (or more commonly the error of not being able to measure accurately but...
  9. rvallee

    Symptom Presentation and Access to Medical Care in Patients With Postural Orthostatic Tachycardia Syndrome: Role of Sex, 2021, Kate M Bourne et al

    Those numbers are a massive undercount, do not account that the vast majority are never diagnosed. So the misdiagnosis rates and delays to diagnosis are basically a rosy picture that represents the best case scenarios. Denominators are important. What good is awareness and recognition if this...
  10. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I never you knew you were that much of an optimist. It's nice to dream, though. I will be watching for flying pigs, if anyone asks. They're just a little airborne, they're still good.
  11. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I have confidence in the IAG. Precisely because it's independent, and relative to how independent it will show itself to be. Choosing Bastian is the only good decision Cochrane has made in this entire mess. But Cochrane did not put in the resources for it to succeed, and I don't trust what they...
  12. rvallee

    Ed Yong: Health-Care Workers With Long COVID Are Being Dismissed

    Another fantastic article by Ed Yong, on the abysmal experience of health care workers dealing with gaslighting and denial from their colleagues. Very similar to Royal Free and other outbreaks, just on a much larger scale. It seems that health care workers do not like being treated like they...
  13. rvallee

    UK - NHS England online tool and clinics for long Covid.

    They don't have a clue. They genuinely don't have a single damn clue. Medicine will have to be dragged kicking and screaming to simply begin doing the right thing. Long Covid: Sick and suffering face long wait for help...
  14. rvallee

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Not sure where else to post this but I think it's the same unit:
  15. rvallee

    Expanding Access to Specialty Care Using Video-Telehealth: The Case for Functional Neurological Disorder, 2021, Perez

    Interesting that they did not name or reference them. I assume one of them is the CODES trial, which if anyone remembers had null results. A null result is evidence, if one does not care about things like substance, and accuracy, or even relevance. I still do not understand why the alternative...
  16. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Uh. Also, haven't seen much of this, glimpses, but tomorrow will be a LC awareness day for some.
  17. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    One possibility is that Cochrane is the new battleground and lots is happening but none that we will hear about. Clearly far easier to influence than NICE. It would be nice to know what's happening behind the scenes, but I assume a lot is. Especially with Paul "Scuba" Garner on board. Both are...
  18. rvallee

    UK: Guardian: "NHS to give therapy for depression before medication under new guidelines"

    I'm sorry but the idea that millions of people, in the UK alone, live with mild depression needing "cognitive rehabilitation" or therapy is absurd. It's a complete misunderstanding and/or misinterpretation of the underlying data. It's equally absurd that no one seems to question the validity of...
  19. rvallee

    Long covid after breakthrough infection

    I have yet to see recognition that vaccines make some pwLC and pwME worse, or may have triggered LC (although it could be more in the "making worse" category). This is very bad for vaccine messaging, it will be used, and rightfully so, by the anti-vaccine movement. Hiding the truth breeds...
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