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Depends. If the job is to publish papers, as many papers as possible, they're doing their job. And it is. I think it's fair to say that academic publishing is about publishing papers and nothing else. Whether they are any useful, or accurate, is not anyone's actual job. Even when errors are...

"Don't test children, it's harmless to them, they're probably not even contagious" "There is no evidence of a large number of infections in children" "Children possibly are less infected than adults, explaining this" This is exactly like the "there are no reports of harm from GET" to reports...

The lack of attention to details is incredible. ME is not "fatigue, but as a disease", what an ignorant thing to say. But of course that's what's generally believed so this is basically systemic incompetence. What I don't get is on what basis these people think they actually understand fatigue...

Excessive metaphor alert

Going through this is interesting: "Essentially the same". Makes the changes to outcomes during the trial especially unethical and unjustified. This was their 4th try at a formulaic methodology. Although they did clear that up by specifying later on that it's because they preferred better...

:facepalm:

I'll scream this until my throat is a lump of bloody raw meat, but I am 100% certain this is the real placebo/nocebo effect: imprecision from non-measurement. Everything else is either unaccounted for or an artifact like a random correlation. Once clinical psychology stops messing out as if...

As defined by this study. Regardless, I agree this is far more significant in itself than whatever causative rabbit they are fetching out of this hat.

Uh, what? Most symptoms are neurological and we see the same with LC where many early neurological symptoms are one of the best predictors. Most of our symptoms are neurological, if not by burden at least by number. I get that it's generally agreed. It's blatantly wrong, though.

Yup, LP alright.

He actually replied... :facepalm: Good reply to him, though. I guess he must have an alert for misspellings of his name. I think he put it best when he went to the radio program where he was asked about his accomplishments and I don't remember the other thing but he only mentioned 2 things and...

I raised that question many times. Doesn't seem like others share that concern. I don't doubt they spent that money, but it's impossible to justify other than having created a large enough sunk cost that the trial was too politically desired and allowed the cheating to be made official. This...

That's what the demonizing campaigns in the media are for. They know we're angry, they just treat it as a PR issue regarding their reputation. Or discuss it as a side-issue in academic literature, forever unable to even imagine that what they're doing is just cheap pseudoscience. By far the...

All other things: not equal. If people want to find something vague, they'll find it. The big question is why do some people so desperately want this ideology to be true? What really drives this mindless obsession? This is basically a repeat of the bad mother trope of autism.

Literally the whole point of experts is that they don't get fooled by stuff like this and can pay attention to details. This is pathetic. The whole profession needs a complete reset, none of this is normal.

Research and adequate services are held up because the definition is unsatisfactory, but every process comes up with roughly the same definition. So how does this infinite loop stop looping around? What's explicit is that the demand is for the full pathophysiology, even though many diseases...

Fake BS. Managed discussion putting their own words into the participants' mouths by restricting the topics to what interests them. No patient cares about the biopsychosocial model of illness anymore than people care about the programming language used in the software applications they use. It...

So: socioeconomic, biological, biological, biological and biological. Gotcha. Sure seems like medical assessment of "anxiety" and "depression" have little to do with either. No surprise, since that's their intent. But sure, focus on anxiety and depression. It's easy and no one can check as it's...

I highlighted the same part. He doesn't even believe those words, has literally spent much of his career fighting us over this. Hollow man with empty words, playing unelected politician.

Honestly, I think the concern here is a bit unwarranted. The downside of being a discriminated patient community is that no one cares what we say, or even happens to us. The upside, when stuff like that happens, is the same. No one cares about this stuff and it's already roughly the current...