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Trigger warning for distressing material.

Brace yourself if you are squeamish One of the members of the Irish ME/CFS Association who is quite severely affected called and wants us to pass this on to our members. She said she was sent to A and E recently as she was getting flashing lights in her eyes. It turned out she was over-using...

There are 2 references to "chronic fatigue syndrome" in this CBC (Canada) piece: https://www.cbc.ca/news/canada/kitchener-waterloo/university-of-guelph-covid-19-long-haulers-1.5811853 ---

Thanks. I had also wondered whether it was a commissioned survey and so thought it might be more prominent but it looks like it didn’t have that status.

Thanks, I'll pass that on. But my guess is the person wanted to see where it is referenced in the NICE documentation though perhaps the minutes of that scoping meeting does mention something.

Can anyone help me reply to this question I received: I know that the attached survey was submitted but not sure where to find it referenced in the documentation.

"No More Mr NICE Guy…" by Prof. Brian Hughes https://www.s4me.info/threads/no-more-mr-nice-guy…-by-prof-brian-hughes.17915/ Moderator note: To discuss this article, please go to this thread: "No More Mr NICE Guy…" by Prof. Brian Hughes

He's a member here, so I'll tag him and he might see it at some stage. @Brian Hughes

Thanks for replying. It's a very good blog, which I'm highlighting, but think it might be a bit technical for some in a lay audience.

Merged thread https://thesciencebit.net/2020/11/21/no-more-mr-nice-guy/

Somebody sent me this: Initial reply: Any suggestions? Edited to add: I just also sent this Perhaps this image and this link might do the job? https://www.meaction.net/stoprestpace Edited to add: she is happy with MEaction one

"The heterogeneity in the physical activity pattern between subjects within the CFS and control group did not differ." https://pubmed.ncbi.nlm.nih.gov/21843746/ "There is no difference in variation of physical activity levels between patients with chronic fatigue syndrome and healthy control...

It's a few days since I read this but I don't think there's anything new in it for people who have been following things closely. But perhaps it might be of use to somebody who wants a summary.

Here are the slides that went along with the presentation. I was particularly irked by his criticism of the woman in the mobility scooter

This video is still available here.

From Hans Knoop's PhD thesis. https://repository.ubn.ru.nl/bitstream/handle/2066/65596/65596_cognbethf.pdf?sequence=1 Peter White co-authored a paper with him on full recovery following CBT.