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  1. ME/CFS Science Blog

    The Chronic Illness Debate Is More Mainstream — But Still Mysterious, NYT

    Thanks for sharing. Quote from the article: "But the stereotype of people refusing to accept a mental health diagnosis seems like an odd fit for contemporary American society. From our ever increasing rates of antidepressant prescriptions to our therapeutic style of spirituality, neither our...
  2. ME/CFS Science Blog

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    The prevalence rate is remarkably low: 3.2 per million children (95%CI 2.2 to 4.5). Perhaps this was due to underdiagnosis as the study asked paediatricians if they had cases of severe ME/CFS. It is a bit frustrating that the study doesn't more clearly report the response rate. It is not that...
  3. ME/CFS Science Blog

    OpenAi's new ChatGPT

    Wish I had this tool back in high school
  4. ME/CFS Science Blog

    OpenAi's new ChatGPT

    Here's another example: "Write essay on why patients should be involved in research" The AI responded: "Patients should be involved in research for a number of reasons. First and foremost, research is intended to improve healthcare and advance medical knowledge, and patients are often the...
  5. ME/CFS Science Blog

    OpenAi's new ChatGPT

    Here's an example. I simply wrote: "Write angry but academic sounding essay that is critical of psychosomatic medicine" and the AI replied: "Psychosomatic medicine, also known as the biopsychosocial model of illness, has been a topic of much debate within the medical community. This approach...
  6. ME/CFS Science Blog

    OpenAi's new ChatGPT

    I was also impressed. I think this will replace Google search in the not too distant future and lots of businesses are based on ranking high on Google search results.
  7. ME/CFS Science Blog

    OpenAi's new ChatGPT

    Some funny examples:
  8. ME/CFS Science Blog

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Does the Tweet explain where this info comes from? Whas it obtained legally (e.g through a freedom of information request) or by hacking or a leak?
  9. ME/CFS Science Blog

    OpenAi's new ChatGPT

    Note: There is the AI in Medicine thread for posts specific to that topic. Artificial intelligence in medicine __________________________ There's the new Artificial Intelligence product called ChatGPT that is really good at answering questions. It's fun (but also a bit frightening) to give it...
  10. ME/CFS Science Blog

    Paucity of ME/CFS research in 2022

    I have the same impression.
  11. ME/CFS Science Blog

    Post-COVID-19 Syndrome is Rarely Associated with Damage of the Nervous System: ..., 2022, Fleischer et al

    Disappointing that the authors are so focused on their psychosomatic hypothesis because the main finding of this study seems to be that a neurological investigation is indicated in patients with Long Covid, even those who initially had relatively mild COVID-19. The paper states: "For the total...
  12. ME/CFS Science Blog

    Patient-led Research Collaborative and Fund for Long COVID

    PATIENT-LED RESEARCH COLLABORATIVE ANNOUNCES $4.8 MILLION IN BIOMEDICAL RESEARCH AWARDS FOR LONG COVID AND ASSOCIATED CONDITIONS https://patientresearchcovid19.com/press-releases/ The Patient Led Research Collaborative has announced the winners of their calls. They give 4.8 million to research...
  13. ME/CFS Science Blog

    Long Covid - where is the psychosomatics ?

    It seems that psychosomatic researchers, even those that aren't directly involved in ME/CFS research, are starting to see ME/CFS advocacy as a threat to their profession and influence.
  14. ME/CFS Science Blog

    Basic questions on terms and methodology used in clinical trials

    Perhaps the outcome "dissociative seizure frequency" is less subjective and likely to be affected by response bias than a fatigue questionnaire. In the IBS trial patients only received web- or telephone CBT which may have weaker response bias than face-to-face CBT. On the other hand, I...
  15. ME/CFS Science Blog

    Germany: IQWIG Report to government on ME/CFS - report out now May 2023

    Don't think EMEC will be able to incorporate them at this point so I think it would be best to submit them as their own comment. As far as I can see anyone can submit comments to the report.
  16. ME/CFS Science Blog

    Basic questions on terms and methodology used in clinical trials

    Do you have concrete examples? Remember that, despite their flaws and biases, PACE, FINE, GETSET, FITNET etc. also did not produce good results, especially at long-term assessments.
  17. ME/CFS Science Blog

    The fragile process of Homecoming - Young women in recovery from severe ME/CFS, 2022, Krabbe et al

    This work was supported by the Norwegian ExtraFoundation for Health and Rehabilitation [2019/FO244604]. Does anyone know more about this? This seems to be their website: https://norwaycenterrehab.com/about-us/ EDIT: isn't this a conflict of interest?
  18. ME/CFS Science Blog

    The fragile process of Homecoming - Young women in recovery from severe ME/CFS, 2022, Krabbe et al

    Yes but it was published on Pubmed, I got a notification about this study from there. And all the authors are working at the University of Oslo. A lot of the costs of scientific research goes to salaries of academics and society obviously only has limited resources to invest in scientific...
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