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Strange that this is still being done at universities. Shows that a large part of academic life has little to do with science and knowledge gathering.

Had a brief look at the Google Translated version of the document. They seem to have taken a rather stringent view on case definitions in that only the more recent case definitions that require PEM (CCC, ICC, IOM) are believed to capture the correct patient population. In their view, older case...

Busse has a background in insurance medicine. He previously worked as a consultant to Prisma Health Canada, which is a private incorporated company funded by employers and insurers that consults on and manages long-term disability claims. He mentioned this as a COI in previous papers, for...

This seems to be a separate study from the same authors. It also seems highly problematic. Made a separate thread for it: https://www.s4me.info/threads/mcmaster-university-study-on-cfs-me-meredith-vanstone-jason-busse-dena-zeraatkar.29762/

The Reddit thread and study were originally posted in the News About Canada Thread here.

Patients had to fill in this questionnaire but the study consisted of a 45-60 minute online interview. I find it a bit strange that the survey doesn't ask much questions about symptoms or medical examinations (to determine diagnostic criteria) and that they are simply recruiting patients online...

The information about this study was posted on this Reddit Thread where apparently MacMaster University was trying to recruit ME/CFS patients. Here's how the McMasterCFS account represented itself and the study: "Our team is made up of Dr. Meredith Vanstone who is a Scientist who studies...

The authors of the MetaBlind study had a more cautious interpretation of their findings than Busse. They wrote: "We are unclear to what extent our results show that blinding is less important than previously believed, show the limitations of the meta-epidemiological approach (eg, residual...

Bit strange that the authors have never published on ME/CFS before but now want to develop a "Core Outcome Set." I get the impression that the main goal is to lower the standards for what counts as quality evidence:

More studies mentioned here: https://www.s4me.info/threads/action-for-mes-documents-me-and-work-and-and-employers-guide-to-me.8421/page-3#post-148732

When they looked at substantial fatigue, which does require a minimum level of severity, there was a clear difference: 11% in the sars-cov-2 group and 4.5% in the control group. The authors highlight, however, that the effect sizes for all outcomes were "reduced markedly" when they only...

Thanks for posting. It includes a brief commentary by Leonard Jason: "This is a study of a small number of fatigued kids," said Leonard Jason, PhD, creator of the DSQ and the director of the Center for Community Research at DePaul University in Chicago, who cautioned that the German...

The paper speaks of ME/CFS but it did not assess ME/CFS. It said it uses the paediatric DePaul Symptom Questionnaire but they ignored how it should be scored and instead made up their own rules. The result is that 30% of their control group where cases, "reporting clustered ME/CFS symptoms"...

Looks like Simon Wessely was part of the GDG panel. But also ME/CFS researcher Simon Décary.

The authors write: "Of particular note is a cumulative treatment incidence of 1.6% for chronic fatigue syndrome in the COVID-19 group, with 0.6% of all patients with COVID-19 receiving the diagnosis in multiple quarterly periods. Among patients with other respiratory infection and in controls...

Now published in BMJ Open: https://bmjopen.bmj.com/content/12/9/e064979.long The data is based on insurance records and CFS diagnosis were recorded using the ICD-10-GM, so there might have been underdiagnosis as many doctors do not recognize the illness or make the diagnosis.

Just noticed that this WHO guideline on the management of Long Covid references the Larun et al. 2019 Cochrane review on GET. Another reminder that it's important to get this issue fixed. https://www.s4me.info/threads/who-clinical-management-of-covid-19-patients-living-guideline.29517/ Are...

The document has a section (page 110) on PEM, which they call PESE, which is largely based on the NICE guideline and recommends pacing. But strangely, it doesn't mention ME/CFS itself. I would think it would be quite useful for patients who developed ME/CFS after Covid-19, to be able to get this...

Exciting that the study has started! I hope I'm not wrong in stating this but if you are not invited to the second stage to provide a DNA sample, that doesn't necessarily mean you do not have ME/CFS. Selection criteria for scientific studies are often different from clinical diagnosis...

It seems that the protests where quite successful and picked up by some big news outlets. Big thanks to everyone who participated.