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Really? I thought that case wasn't as clear either. From Wikipedia:

I tend to disagree cause that sort of what fatigue is: a perception. So I don't see the difference between fatigue and the perception of fatigue. When it comes to measuring fatigue I think that questionnaires will be more accurate than surrogate measures like actigraphy. One can be really...

It also looks like they didn't do an intention to treat analysis because they say they randomized 72 patients, but only analyse the results of 50. Anyway, the results clearly show no meaningful differences between the two groups, even if the authors tried to search for them by analyzing all...

I'm still waiting for the first study that appropriately selected COVID-patients and a control group, followed them up for a long enough time (6 months or longer) and that used a stringent threshold for disability (for example ME/CFS criteria), not just how many people report symptoms. CFS...

The big question that the authors don't answer is: how do we know that central sensitization is happening or not? They define central sensitization as "amplification of neural signalling within the CNS that elicits pain hypersensitivity" but as far as I can see one can't really test or measure...

More info here: https://www.s4me.info/threads/central-sensitization-a-matter-of-concern.5346/

Looks like most people report onset of PEM shortly after exertion @Trish

Background Post-exertional malaise (PEM) is a defining characteristic of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) but there is insufficient research dissecting the nature of PEM from the patients’ perspective. Methods A PEM questionnaire administered to 150 ME/CFS patients...

All in all, I found the percentages of patients who met each of the case definitions to be quite high. I suspected the problem would be much bigger!

Some more quotes: "I was also getting really tachycardic on any exertion. And I didn’t want to admit it because I think I was worried about it being dismissed as anxiety" - Jenna "I wondered if I could have some basic bloods. She said “there’s nothing we can do, this is all post-viral and you...

Thanks! We're starting with illnesses where psychosomatic theories were once quite popular or influential, but where the dominant view has strongly shifted over the years. For example asthma, epilepsy, colitis, autism etc. Migraine however seems to be an example, unfortunately, where...

New blog post on the dark psychosomatic history of asthma: In this blog post, we delve into the psychosomatic history of asthma. Long considered an archetypal psychosomatic condition, asthma was said to reflect a suppressed cry for the mother’s help or attention. Patients with asthma were...

I simply use my laptop on my lap while sitting or lying down. I doubt that you need any special kind of chair or setup, just a small (14 inch or smaller) laptop with a good enough trackpad so you don't need a mouse.

Made me wonder if someone is writing a diary of what life with ME/CFS is like in the early 21st century. Could be an interesting project.

More good news from Germany:

Studies like this one do not answer many questions. Still waiting for the first decent epidemiological study that shows that COVID-19 leads to increased disability and/or ME/CFS compared to a control group.

This is really great news.

Sounds like great news.

This study has been used as an example of the nocebo-effect: patients who were told that the medicine could result in erectile dysfunction reported this side-effect 3 times as much as the control group who were given no such warning. I think it might also show how easy it is for trialists to...