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I often and easily hit the maximum heart rate recommended by the authors just walking or even standing up. I go outside and walk on most days, as able on that day. Then again I'm not an adolescent anymore. Right now my heart rate is 87 while sitting. It probably went up because I've eaten...

To me it seems that psychiatry is attempting to treat poorly understood conditions and it shouldn't come as surprise that this can easily go wrong. On the other hand, is it worse than making no attempt to treat patients? Generally it's probably doing more good than harm. For someone that was...

Exactly. The first paper on CBT/GET presented it as solution. There was no doubt in the author's minds as to what the problem was and what solution it required. Judging by his other published papers, at the time Wessely also had an interest in mass hysteria and that is presumably how he saw...

They also often have a disabling multi symptom syndrome. If "hEDS" is a bad narrative for what is going on, then what is a good narrative?

These patients say that their joints often get out of position even while doing ordinary things. That seems hard to reconcile with "in their head".

Does the "lack of differences" also hold when PEM is objectively measured? The IOM report concluded that PEM is the symptom that best helps distinguishing ME/CFS from other conditions. It would be interesting to compare the reasoning used by the IOM report and that of the author. I find it...

In my opinion it's fairly clear that rights are not won by behaving nicely. You have to fight.

How is this different from "We have the impression that the symptoms are triggered by negative karma from past lives. This can also be treated very well. But the willingness to do so is less pronounced because people don't accept that they have behaved badly in their past lives"? The only...

If so much criticism is of CBT/GET here, it's because of all the different schools of thought, its theoretical foundation is one of the most absurd, the quality of science the most consistently flawed despite significant funding and credentialed authors, and also the most widely applied...

I believe the "non-selective" means that it also allows other cations to pass. Cations include sodium, potassium, magnesium, calcium and others. TRPM3 is most prominently expressed in the kidney with lower expression levels in the central and peripheral nervous systems, testis, and retina. Do...

One could argue that the lack of transparency protecting the CBT/GET people is one of the privileges that has corrupted them. All this privilege and never any consequences for bad behaviour is how they ended up in this mess. They wanted to be our saviours but structural problems in academia and...

Some thoughts. We want to have pictures to accompany articles because pictures make articles more attractive and can communicate things that language cannot. But ME/CFS is an invisible illness, except maybe in those patients that are very severely affected. Photos of the very severely ill...

Most of the twitter summary is okay but this part shows the BPS bias of the authors. They're already using causal language and talk about vicious circles and evoking vague mind-body mechanism. Maybe brain fog has nothing at all to do with complicated biopsychosocial interplays and chain of...

My understanding is that the proposals must be from organizations in the Netherlands, and the named collaborators must also be from the Netherlands. It's worded so that it might allow collaborators from other countries under specific circumstances. The request to write the proposal in English...

I believe in a biomedical solution because the just-try-harder and the think-myself-well and the good-lifestyle approaches didn't work. And also because over time my illness worsened and it becomes harder to believe in non-biomedical solutions with increasing illness severity. This depiction of...

Garner's behaviour explains so much about Cochrane, doesn't it? The anti-pharma and the pro-lifestyle changes bias. In the end it all seems to come down to difficulty adjusting to the reality of having a mortal, vulnerable body and the existence of terrible uncontrollable diseases. I can...

The petitioner gave a very good speech, quickly describing the level of impairment and desperation of patients, the unbelievable neglect, psychologization, and economic impact. Also the expectation that cases will rise substantially due to the pandemic. The petitioner said that his disability...

I haven't watched this yet.

The first step to building that is to recognize the need for it.