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  1. Hoopoe

    Prevalence of Aspergillus-Derived Mycotoxins (Ochratoxin, Aflatoxin, and Gliotoxin) and Their Distribution in the Urinalysis of ME/CFS, 2022, Yu Wu

    The patients had a "concurrent history of mold exposure". It's not clear to me what that means. Were the patients living in moldy buildings? Were they living in them at some point in their lives, maybe years ago? There also needs to be a control group because it could be a situation where...
  2. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I still can't process that Flottorp is apparently a trained scientist with an interest in quality of evidence and yet appears to believe in the lightning process on the basis of anecdotes and junk studies.
  3. Hoopoe

    Strongyloidiasis - nematode infection

    Florist diagnoses her own strongyloidiasis infection https://www.dailymail.co.uk/news/article-10503761/Florist-57-agony-dismissed-FIVE-years-lethal-snake-parasite-body.html
  4. Hoopoe

    News from Scandinavia

    I wonder how many cases of disability from ME/CFS secondary to covid can be attributed to Per Fink's false claim that there is no relationship between infection and ME/CFS. Maybe none because the decision to withdraw the anti-covid measures wasn't based on this information. Maybe it was central.
  5. Hoopoe

    News from Scandinavia

    With Per Fink giving advice, it's not surprising that Denmark is acting like long covid doesn't exist.
  6. Hoopoe

    News from Scandinavia

    I looked a bit at that. It says "bodily distress disorder" is a term used to refer to ME/CFS. It says the illness is determined by cultural factors, that the illness is only seen in some countries and that prevalence in the US is sharply declining. No references are given if I remember right...
  7. Hoopoe

    Help Me Write A Quantum Leap Episode About ME

    ... then the protagonist discovers this is impossible and has to invent a cure instead, which turns out to be easier.
  8. Hoopoe

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    The Oxford diagnostic criteria? It really is all projection in this article, isn't it? ;)
  9. Hoopoe

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    Let's not get overly pessimistic. The authors are feeling threatened and are having difficulty making a coherent response. That suggests the criticism was on target.
  10. Hoopoe

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    If I remember right, Wilshire et al looked at whether cross-over between treatment groups could explain the null results in PACE at followup and concluded it couldn't. Null results remained even if patients who crossed-over were excluded from analysis.
  11. Hoopoe

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    What are they even trying to say here? I read this over and over again trying to understand their reasoning. That certain illnesses don't have an objective diagnostic test doesn't mean that clinical trials of treatments for these illnesses don't suffer from reporting bias affecting the...
  12. Hoopoe

    Coining a term for being limited in your interrelated energy and time.

    Energy-impairment. And it's meant to refer to: low capacity to sustain exertion, slow recovery from exertion.
  13. Hoopoe

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    The National Institute for Health and Care Excellence (NICE) in the UK published a new chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) guideline in October, 2021.The previous NICE 2007 guideline recommended cognitive behavioural therapy (CBT) and graded exercise therapy (GET) for...
  14. Hoopoe

    Targeting the Monocytic-Endothelial-Platelet Axis with Maraviroc and Pravastatin as a Therapeutic Option to Treat Long COVID/ Patterson/PP

    Assuming the S1 protein persistence is real, what are the implications? That there is a persistent infection? That the virus has somehow integrated itself into host DNA?
  15. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Most major disease will have patient forums for mutual support where pretty much everyone agrees that the disease is "physical". The people who think they're pointing out some unusual and abnormal behaviour don't seem to be bright.
  16. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I hope they're heading into a sewer and that the smell will stick to LP for years to come. The national ethics committee won't be pleased to see their "final decision" simply ignored.
  17. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    If the "semi structural conversation about motivation for change" is new then the study is even worse than the one before that got rejected in terms of bias. If not then nothing has changed substantially. Landmark proving the national ethics committee was right to reject this.
  18. Hoopoe

    Long Covid in the media and social media 2022

    I wish I could swim 20 minutes without pause... Maybe one day, with the right treatment.
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