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I only read his article on PACE and it was excellent. He also wasn't afraid of making the connection to the health insurance industry. He wrote

Posts moved from BPS attempts at psychologizing #LongCovid Garner sharing his latest wisdom

A compromise wouldn't do justice to people with ME/CFS because as long as the core issue is not adressed, there will be a never ending stream of placebo therapies that cause harm in all the ways they cause harm. LP and ACT are already lined up to take the spot of CBT/GET, should they be...

What a sad disaster this for the affected patients and their families. It looks like SARS2 is more likely to cause long lasting problems than many other viruses known to cause long lasting problems.

Thank you. I somehow missed that post. Some comments on the CGI scores The authors say they chose CGI because "Some trials also reported clinical global impression (CGI) change scores of overall health, but rarely interpreted the data regarding deterioration on this measure" which seems...

I've had the suspicion for a while that pain neuroscience education might belong in the category of interventions that appear to work because 1) they modify the patient's perception of their health, 2) the patient's perception of their health is used as measure of whether the intervention works...

The committee's view that wait list controls are adequate is odd. It's easy to find critiques of the wait list control groups in psychotherapy research. It has even been argued that they could be a nocebo. This raises an interesting question about what control group would be ideal. Given the...

Everything about LP is designed to maximize bias and placebo effects. This ruling is very satisfying and encouraging. Hopefully it signals better days to come.

This could be a serious obstacle to any further LP studies. It's at the core of what is LP is and how it's supposed to work which seems to imply that LP studies are inevitably fatally flawed. Unless they use objective outcomes but I think Landmark is clever enough to avoid them. They're likely...

I would like to read this paper but sci-hub doesn't have it.

Because it would look silly to claim an improvement in physical function without a change in VO2 max!

The problem I have with that it sounds like a failure to distinguish between feeling tired after exercise and PEM. In my experience these are two different phenomena and feeling tired after exercise is much less a problem than PEM.

We need to understand what is going on internally at Cochrane. If it's a simple misunderstanding of ME (erroneously viewing it as a state of deconditioning) then it should be easy to fix if people are willing to listen.

Thanks for sharing. This is what I have I think, except that it was there even when I didn't have POTS. It's likely to be partially genetic in my case. PEM, OI, strange blood glucose regulation problems, fatigue, brain fog, low blood pressure and others might just be an expression of an...

Unblinded trial so not impressive. The Chalder scale abnormality is probably just how the software displays the data in the graph.

The delay could be an excuse to give the CBT/GET lobby more time to produce evidence tailor made to change the draft guidelines.

I can see the importance of considering political and social factors during the review even though a technical process seems like it would be an easy win for patients. A relevant sociopolitical factor is that society doesn't want to take on the responsibility of caring for people with ME and...

It should be limited in scope so as not to become a lot of work. I don't see the point in doing fine grained analyses of clinical trials. For example, on the topic of diagnostic criteria it could say that one with postexertional malaise should be used. For treatments it could say that...

I think there is a chance that it could have some influence if it's endorsed by patient organizations. It's also a response to organizations that publish guidelines but exclude patients from the development or limit patient involvement.

My best guess is that to them "all in the head" means imaginary, whereas curing illness by changing one's attitude to the symptoms doesn't mean imaginary, but rather changing physiology through the power of the mind. To those who don't believe that the mind has the power to change physiology...