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  1. Hoopoe

    Energy production and autonomic dysfunction: how are they connected?

    What might happen if there is autonomic dysfunction? Not enough stimulation of energy production at the time it's needed, and maybe excessive stimulation when it's inappropriate? Like, not enough during activities, and too much during rest. Is the noradrenaline release associated with POTS...
  2. Hoopoe

    Energy production and autonomic dysfunction: how are they connected?

    If there was a general dysfunction of the autonomic nervous system, what effects would that have on energy production? I know that insulin release is (partially?) dependent on signals from the autonomic nervous system. Autonomic dysfunction of the POTS type can be associated with increased...
  3. Hoopoe

    United Kingdom: Science Media Centre (including Fiona Fox)

    Re. the reference to fascism. In Nazi Germany and Austria, some of the first victims of the regime were those disabled by chronic illness. That group likely included many survivors of the 1918 pandemic. They even gassed a distant member of my family because he had no fixed employment.
  4. Hoopoe

    United Kingdom: Science Media Centre (including Fiona Fox)

    Yes it's also serious journalistic failure to get facts so wrong.
  5. Hoopoe

    United Kingdom: Science Media Centre (including Fiona Fox)

    Let them know that was Fox is saying is inaccurate. The "harassment" turned out to be freedom of information requests, and the death threats seem very likely grossly exaggerated or entirely made up (I suspect most of them are made up), and even if they happened, they are being used to attack...
  6. Hoopoe

    United Kingdom: Science Media Centre (including Fiona Fox)

    The conflict as being "scientists versus patients" is a false construction. There was plenty of criticism of PACE from scientists. My impression is that the people involved in medical research outside the UK and with an interest in ME/CFS were mostly on the side of the patients. If anything...
  7. Hoopoe

    Could SARS-CoV-2 Have Bacteriophage Behavior or Induce the Activity of Other Bacteriophages?, 2022, Brogna et al

    Is there any reason that long covid couldn't be explained by a infection of intestinal bacteria, leading to continued exposure to spike protein, perhaps for many more months after the apparent end of the infection? And then eventually to some sort of dysregulation of the immune system that...
  8. Hoopoe

    United Kingdom: Science Media Centre (including Fiona Fox)

    I'm sure the masses of people who falsely believe they are disabled by an illness will very soon see the light and recognize they're disabled only by their own negative attitude.
  9. Hoopoe

    United Kingdom: Science Media Centre (including Fiona Fox)

    Yes the SMC created a fake controversy ("death threats & dangerous militants attacking science because of bigotry") to distract from the real one. The real controversy being that PACE showed CBT/GET did not work, and PACE was meant to be the definitive test for a specific medical-political...
  10. Hoopoe

    United Kingdom: Science Media Centre (including Fiona Fox)

    Didn't her adopted sister also have ME at some point? Maybe I'm misremembering. Anyway. Does the chapter on ME/CFS explain why she has such an intense dislike for patients with this illness?
  11. Hoopoe

    United Kingdom: Science Media Centre (including Fiona Fox)

    The story changes every time it's told. Sounds like she is making things up. Pretend to be one of them and destroy them from the inside is how this group of people operates, isn't it? Because they see themselves as sort of moral police and ME as group that promotes immoral thoughts and behaviours.
  12. Hoopoe

    Mpox, formerly called Monkeypox

    Why is monkeypox spreading at an accelerated rate now? I've read that the initial genomic analysis suggests that the increased transmission of the monkeypox virus is not due to mutations of the virus. Is SARS-2 causing immune suppression that favors transmission of the monkeypox virus?
  13. Hoopoe

    Analysis of malingered psychological symptoms in a clinical sample for early detection in initial interviews, 2022, Barbosa-Torres et al

    That seems to show that a patient being labelled as malingerer may just mean that they don't have a normative symptom profile. Which could easily occur due to for example the patient having one diagnosed illness and one undiagnosed one, giving the impression that the patient has more symptoms...
  14. Hoopoe

    Evaluation of a Gene–Environment Interaction of PON1 and Low-Level Nerve Agent Exposure with Gulf War Illness..., 2022, Haley et al

    Organophosphate-based pesticides have been linked to a ME-like illness. My understanding is that Sarin is chemically similar to these organophosphates pesticides but much stronger. Now Sarin has been linked to a ME-like syndrome. Can this tell us something about what might be going on in ME...
  15. Hoopoe

    CBT for Long-Term Conditions and Medically Unexplained Symptoms by Helen Moya and Philip KINSELLA

    The book says "With MUS psychological processes are generating physical symptoms."
  16. Hoopoe

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Very encouraging. I love how the priority setting partnership makes it very clear that the CBT/GET approach and model is irrelevant for patients.
  17. Hoopoe

    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    My impression is that the author seems to believe that CFS is caused by an undiscovered AIDS-like virus. Maybe I'm just misunderstanding. And then it's hinted that there is some establishment coverup. Again maybe I'm misunderstanding. I can see why this narrative appears to patients who have...
  18. Hoopoe

    Emerge Australia Research meeting Twitter summary

    I wanted to highlight how a hypothesis of mitochondrial dysfunction is being proposed by mitochondrial researchers (Paul Fisher). This isn't just an idea from amateur patients. There was also a bit about a diagnostic test. And this graph is interesting because it looks like the biphasic...
  19. Hoopoe

    Too many medical investigations of children and adolescents can make matters worse, Dagens Medisin

    Yes these patients will feel deeply betrayed when they realize they were told some nonsense to keep them quiet because physicians back then didn't want to put in effort in diagnosing the problem or at least speak honestly about being unable to do so.
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