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I need to clarify. Sections with speech marks are direct quotes. For the content that doesn't have speech marks, I have summarised and may have used different words. Dr Shah didn't use the word 'fatter', I think. It was 'higher BMI'. (I think the finding that Long Covid occurs more often in...

The second section is presented by a dedicated respiratory specialist who passionately encourages the listeners to work to get their patients to stop smoking. Dr Shah had to step out for a while. The respiratory physician discusses microclots at the 1.04 mark though. Dr Shah is back at 1.12.

I'm running out of energy fast and haven't listened to the second section yet. I'm sorry for the long post above, but I just thought it was all so revealing. Dr Shah appears to be a perfectly nice and caring person, and he's the chair of the independent expert panel for the NICE Long Covid...

One of the Pulse webinars provided for the training of medical professionals in the UK. The 1.5 hours presentation counts for 0.5 CPD credits. https://pulse365.uk/resources/long-covid/ The first part is presented by Dr Waqaar Shah. "clinical director, Wandsworth CCG and chairman of the expert...

https://pulse365.uk Pulse has a range of internet facilities designed to inform (primarily UK) health professionals. pulse 365 offers courses and webinars that come with CPD credits. As well as as the Key questions: postural tachycardia syndrome, there are some other courses of particular...

Some discussion on the 'tuberculosis vaccine as cure' idea and Faustman here: Tuberculosis Vaccine as a cure for diabetes, multiple sclerosis NYU has withdrawn from a BCG trial in paediatric diabetes.

See also this discussion thread BCG Tuberculosis vaccine - and related testing - Epic Genetics

It wasn't so much the percentage figure, more something like: Even the editors of the Journal of Psychosomatic Research have acknowledged that history provides many examples where practitioners of medicine have believed that a treatment was sound, when it turned out to be ineffective. Further...

This, in an editorial in the Journal of Psychosomatic Research: @cassava7 - perhaps there is something here that could contribute to your IQWIG submission?

That's a great and very sad article @dave30th There are a couple of minor errors with these paragraphs: The link goes through to the CDC, not NICE. And the final version of the NICE guideline refers to post-exertional malaise, not post-exertional symptom exacerbation (although the draft did...

Report from the second webinar: 3rd scorecard: Patient-Partner governance Patients may have a voice but may not have a vote. They may be in the management team, but not have a real say and may be treated poorly. I've experienced this as part of a funding panel, where the consumer reps did not...

I'd been getting the impression of progress in Austria, with some interesting research having come out of there over the last year. But here's evidence that there's still a long way to go: Myalgic encephalomyelitis/chronic fatigue syndrome: an overview of current evidence 2023 Ludwig et al

I enjoyed the phrase, but it took me a while to get the reference: A Bayesian account of ‘hysteria’ Mark J. Edwards,1,* Rick A. Adams,2,* Harriet Brown,2 Isabel Paree ́s1 and Karl J. Friston2

HERVS constitute 8% of the human genome. From the same group: Human Endogenous Retrovirus as Therapeutic Targets in Neurologic Disease

Really small samples, but it's interesting. The HERV-W envelope antigens were not identified in any healthy controls. The HERV-W seems to be reactivated in some people with acute Covid-19, and a substantial proportion of people with post-Covid condition had some antigens. Most of the...

I imagine that you have read around the subject well @cassava7, but perhaps for others, this 2020 paper seems to cover a range of diagnostic assessments and evaluates treatment options in a careful way: Functional Dyspepsia: A Review of the Symptoms, Evaluation, and Treatment Options

I'm so sorry to hear that you are having to deal with this difficult problem. I'm so often amazed to hear that someone who makes really useful posts is doing that while going through so much. I can't offer much in the way of insights, but I have had times during my illness when I have...

From memory, I don't think the Study PRN question was recommending people do a CPET, it's just a case study - what could be expected if someone did one. The correct option, again from memory, was something like lower VO2max, lower power and higher lactate. I really should check that, maybe...

From the thread we have on the Pariente study of interferon treatment for people with Hepatitis C, some excerpts posted by chrisb from a 1988 study: It suggests that the people were experiencing a range symptoms that were like influenza, and that the fatigue was exacerbated by physical...

Second webinar coming up soon. [Edit - whoops, this time tomorrow, so still soon, just not right now]