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* Specific action to counter stigma and increase support Most societies are reverting to something approaching normal life while the current pandemic continues. This is a tacit acceptance of deaths, severe acute illness, vaccine-related side effects and the post-infection conditions as...

*Assumptions of psychosomaticisation Some people contend that post-infection syndromes are simply hysteria, where normal sensations such as fatigue following an illness are amplified by fear, secondary gains and deconditioning from a lack of activity during the illness until there is a down-ward...

* Arrangements for convalescence We don't yet know what increases the risk of developing a post-infection syndrome and what increases the chance of making a full recovery. However, a period of convalescence seems likely to give people the best chance of recovery, given the biological evidence...

*Transparency about post-infection syndromes When there is evidence that post-infection syndromes are occurring, governments and employers have a duty of care to their citizens and employees to provide adequate warning about this. This is still not happening in a concerted way. I recall going...

*Insurance treatment of post-infection syndromes I'm writing this in the context of New Zealand Accident Compensation scheme, where people who suffer an accident don't have to sue in order to get support. There is a government managed insurance scheme so that everyone suffering an accident...

I want to put together a list of ethical considerations related to post-infection syndromes arising from an epidemic illness and would appreciate your help. Here's one to start with, and I'll just jot things down as I think of them. Please add your ideas. * Who is put in harms way or...

I'm no expert in how things work in the US either, but I'm pretty sure that if there was a will, there would be a way. The NIH seems to routinely issue specific funding opportunity announcements https://grants.nih.gov/funding/searchguide/index.html#/ e.g. Mass Spectrometric Assays for the...

From that 2019 paper I mentioned above re NMR: NMR does seem to be much better for identification of novel compounds. It sounds, though, that you need a lot more of a metabolite (10 to 100 x what MS will work with) for NMR to find it. For anyone just learning, this 2019 paper seems good...

Yes, we've talked about this problem with mass spectroscopy elsewhere on the forum. Here's something from a 2010 paper. I'm sure that there has been progress since then, but there are still problems: Edit to add - here's a 2019 paper that is a relatively up to date survey of mass...

There's a transcript there. It covers lots of key points - symptoms, no cure, doctors not trained, lots of people undiagnosed. Winstone came across well - young, very athletic, enjoying life, hit with ME/CFS after mononucleosis. Still working but that's pretty much all he can do, and he has...

Australia: NSW Agency for Clinical Innovation: Exercise and long COVID Unhelpful conclusions from elsewhere are collated; conclusion is 'more research is needed'.

2022, and it's still only "promising".

And to distrust their own feelings and perception of symptoms - also not good.

Conflicts of interest? Yep Declared conflicts of interest: Undeclared conflicts of interest: Sagol Center for Hyperbaric Medicine and Research employees Shani Zilberman-Itskovich Merav Cataglona Efrat Sasson Karin Elman-Shina Amir Hadanny Erez Lang Shachar Finci Nir Polack Gregory Fishlev...

Because the quality of the research, and the likelihood of it influencing the understanding of ME/CFS for the better matters deeply to us. Whereas for Reviewer #2, and Reviewer #1, it's often just a matter of getting the peer review done quickly, so they can cross it off the list of jobs to do...

There are no new studies here, it's a review of previous work, mostly by these authors. We'd have to look at the references to see how strong the results are. The conclusion suggests the authors are looking to trial these treatments in people with ME/CFS.

ME Genetics Research Symposium, Edinburgh, 14th September 2022

Thanks AP, interesting. It assumes 26 million of the 87 million confirmed surviving Covid-19 cases have PASC - roughly 30%. It doesn't seem to have any sort of recovery function for PASC numbers, it's just a cumulative figure. It's surely a major over-estimation. The AAPMR surely have a...

I didn't actually mean it as 'mild' plus 'moderate', I meant it as at the worse end of mild, the better end of moderate. Although of course ME/CFS levels are vague and variable.