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The draft report is only available in Finnish, unfortunately. It probably deserves its own thread, so I made one here: https://www.s4me.info/threads/finland-draft-report-on-planned-guidelines-based-on-finks-functional-disorders.3949/ @Esther12, I had accidentally linked to the wrong document --...

STM, the Ministry of Social Affairs and health in Finland, has published a draft report on the planned care plan/guidelines for our disease. Only available in Finnish, so far, I believe...

I don't have any solutions, I'm afraid :) But I believe a great point to start from would be to have laser-focus on the few things that we all agree on. I believe in repeating a few undeniable facts over and over, backed up by solid evidence (including anecdotal evidence such as, for example...

Ekuriren: Kunskap om kronisk trötthet för låg https://www.ekuriren.se/nyheter-fran-tt/kunskap-om-kronisk-trotthet-for-lag/ Google Translate, English ("Too little knowledge about chronic fatigue")...

I'd like to add that I believe our activism has to be very well thought-out, carefully aimed, based on solid facts & evidence, and with a good understanding on how these processes work etc. I can't help feeling as if we are walking a tightrope... even small mistakes can have devastating...

Svenska Dagbladet: Strandhäll: Kunskap om kronisk trötthet för låg https://www.svd.se/kunskap-om-kronisk-trotthet-for-lag Google Translate, English ("Strandhäll: Too little knowledge about chronic fatigue")...

Personally, I'm not sure what to think about this... Could go either way, I guess? I've read some of the drafts of the regional "healthcare programs"/clinical guidelines for ME/CFS that are currently under development, and in my opinion they are leaning way too heavily towards BPS :( I would say...

Yes :( The draft version of STM's (the Ministry of Social Affairs and health) report on the planned new guidelines seem to be based on Fink's model :wtf::mad::nailbiting::cry::eek: http://stm.fi/artikkeli/-/asset_publisher/suositus-toiminnallisten-hairioiden-hoidon-jarjestamisesta-lausunnolle...

Annika Strandhäll, minister of social affairs

Sorry you're having trouble accessing Google Translate. What does does it say in Swedish? No, you don't have to log in. They don't however allow adblockers, could that be the problem perhaps? I just posted a new thread about the Government's statement here: Swedish Government: More knowledge...

Regeringen: Mer kunskap behövs för bättre stöd till personer med kroniskt trötthetssyndrom http://www.regeringen.se/pressmeddelanden/2018/05/mer-kunskap-behovs-for-battre-stod-till-personer-med-kroniskt-trotthetssyndrom/

Three articles in Aftonbladet (Sweden) today: Camilla var sjuk i ME/CFS – reste utomlands för att avsluta sitt liv https://www.aftonbladet.se/nyheter/a/jP78d9/camilla-var-sjuk-i-me-cfs--reste-utomlands-for-att-avsluta-sitt-liv Google Translate, English ("Camilla was ill with ME/CFS -- traveled...

https://sv.wikipedia.org/wiki/Finn_Bengtsson https://twitter.com/finnbengtsson https://finnbengtsson.wordpress.com/ https://sv.wikipedia.org/wiki/Amir_Adan https://twitter.com/amiradan

The term/concept central sensitivity syndromes is used in this proposition to the Swedish government too :( Reading comments by pwme and their carers etc, it's sadly very obvious that they don't understand what CSS actually is. After having it explained to them, almost all of them still choose...

"Due to a large amount of referrals and longer waiting times, we will not be accepting new referrals between 1 May and 31 August. The estimated waiting time for first time visitors is at least 14 months." http://www.storaskondal.se/vara-verksamheter/neurologisk_rehabilitering/mecfs-mottagning/

Linköping Universitet: Nya rön kring kroniskt trötthetssyndrom https://liu.se/nyhet/nya-ron-kring-kroniskt-trotthetssyndrom Google Translate, English ("Linköping University: New Findings about Chronic Fatigue Syndrome")...

Another similar common view, at least among Swedish neurologists, is to describe ME as a "cultural manifestation/expression" (kulturyttring) ... :wtf:o_O:banghead:

Still 'No' for me.

I voted 'No'. To me the term "environmental illness" has the same vibes as "central senstivity" in relation to ME: a completely different meaning than it would have in any other context, any other recognised/accepted disease. The way I interpret what I've read so far, it's just another...