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  1. Inara

    As a psychologist I see the fantasy of neoliberal values having a devastating effect on mental healt

    @healthforall You speak from my heart. I am really touched :emoji_cry: I heard a talk of a Professor who analyses how the "western" system works. And he concluded: Realistically, if one looks at history and how our world is today, one would have to despair. All that we have is hope. That...
  2. Inara

    Dare to hope... what amazingly great thing might happen in S4ME's first year?

    I'll try that in a "small circle", but I'm not sure whether the forum I think about will be open. They are pretty "pro psycho stuff", even in the ME subforum. I was also thinking about something "bigger", like writing to officials. This will need some pre-organization.
  3. Inara

    Dare to hope... what amazingly great thing might happen in S4ME's first year?

    Hi @Esther12, thanks :) Maybe NONE?! Okay, more realistic: almost none in Germany. Just my impression. All I learned was from an English forum. Papers are in English. I shall search for German material.
  4. Inara

    Dare to hope... what amazingly great thing might happen in S4ME's first year?

    @Esther12 Is there anything one can do actively? I came across people in a German ME forum who didn't know what PACE is :jawdrop: If I look to UK (or even US) I get a bit sad because there is so much going on there. (A happy sad, because I am happy for you and sad for me :) )I don't know how...
  5. Inara

    Question concerning XMRV

    Hi @Jonathan Edwards, Nah, give up science? But thanks for clarifying. I wondered about the reviewers "in my time". Those who write the papers often work for long times in that field, about a certain topic. Reviewers are also frome the same field, but often work on completely different...
  6. Inara

    Question concerning XMRV

    Hi @Esther12, thanks! I thought about it, and I discussed this also with a Chemist (who is no expert in this area, but saw electrophoresis more often than I did). I wasn't sure with the scales in the pictures and possible data sets. He told me the data set is the picture itself, there's nothing...
  7. Inara

    Question concerning XMRV

    Another question: I read somewhere (don't know where anymore :( ) that it is common to "send" virus DNA/RNA, that shall be used for vaccines, through mouse cells (e.g. brain cells?). Is this correct? If so, shouldn't it be quite common to find any virus-mouse rests in the human?
  8. Inara

    Question concerning XMRV

    I totally agree! I'm you, some years later ;) (I hope you don't misunderstand)
  9. Inara

    Question concerning XMRV

    Dear @Esther12 Again so many thanks, most of all for your patience :) The pictures do look similar, that was the first thing I thought. The next was: What actually is shown? :) It is not easy to proove something is equal. My questions that popped up: Is the picture really identical? In my...
  10. Inara

    Question concerning XMRV

    That's what I miss - evidence. There are several hints, several indications, you supplied much information (thanks!) - so I can build an opinion. But I would like to know how IT IS. At this point it is not possible, I think. :(
  11. Inara

    Question concerning XMRV

    What I wondered about, too - concerning the question "infectious agent: yes or no?" is the history of ME. One of the earliest cluster was in the 30s, if I recall correctly, in a hospital. Hospital staff was vaccined with a "new" polio vaccine. The staff got sick with ME. There was a lawsuit and...
  12. Inara

    Question concerning XMRV

    "Using changes in sequence" - what is that? That's actually what I meant - it seems all research in this direction was dropped. But I wonder, with this information, how do we know earlier findings were real and not contaminations? What about publications today? Maybe virologists' attention to...
  13. Inara

    Question concerning XMRV

    What infection is that?
  14. Inara

    Question concerning XMRV

    @Valentijn: Thanks a lot for the publication link!!!
  15. Inara

    Question concerning XMRV

    This is a very good question indeed.
  16. Inara

    Question concerning XMRV

    Unfortunately, negative results aren't very welcome in science. (Our professor always said: "No negative results. These are not publishabIe.") I think this is stupid. This may contribute to experiments being repeated until they are "positive" and to scientists beinge fixed on a special outcome...
  17. Inara

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    When I read @Jonathan Edwards' "girlie sytle" post I 'painted' a short video in my mind. I really had to laugh. Plus the unicorn, and then a pink one. Because, when I read that leaflet, especially those narcisstic 'poems', and the poster and saw those pictures, I felt like "what a togetherness...
  18. Inara

    Question concerning XMRV

    This is a huge problem. It's one thing I read that stuff and think: "Well, okay", it's another if a scientist in this field has the problem to say whether it's substantiated or not. My diploma thesis had its basis in a paper by a "big name" mathematician. My job was to implement it and develop...
  19. Inara

    Question concerning XMRV

    At first sight that sounds a little like "I don't want to go down like that one". Which would actually mean that the treatment of Mikovits (jail) chaised others off. Lipkin is not looked upon as a fraud scientist - why would he back off? He could be confident of his findings, unless he feared he...
  20. Inara

    Question concerning XMRV

    Ah, that is interesting. Do you/Does anybody know more about that? Does anybody know whether it was explained one day that retroviral finding etc. "have panned out", as Lipkin assumed? Edit: Ah, I misread Lipkin's quote. He said, "this is NOT going to pan out".
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