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That's a very good point. Sleep problems could well contribute to cognitive problems. But I guess there might be more. A PET scan shows undersupplied brain regions in my case, and I made the recent experience of hypoxia symptoms when air quality wasn't optimal (including weakness and partial...

It's a word I use to explain what I see in my family. (No doctor would tell me my illness might be degenerative, quite the contrary.) It doesn't have to be correct, particularly in general. But it fits my personal observation. I see structural change and loss of function of organs in my family...

Existing symptoms get worse, new symptoms appear, problems with organs arise etc. (in my family's case: the heart, arteriosclerosis, brain strokes...but also rheumatism, cataract, Carpal tunnel syndrome, diabetes, whatever...). I have to say my impression is this is due to overdoing. I am...

Okay, the patent office didn't search thoroughly. Not an exception. But why could that hold before court? I am sure you could prove that you had the idea before them, no? A talk, a paper, anything? That really surprises me...It seems like a clear case at first glance. So either there's more or...

Regarding patent law, novelty, inventive step and commercial applicability are mandatory to get a patent granted. You can hand in any idea. Your application must fulfill certain formalities, but that's it. It isn't even expensive to file a patent application in one country or EU. Of course...

The "problem" with patent applications is they must fulfill certain requirements: the idea must be new, include an inventive step and must be commercially applicable. "New" means the idea mustn't be published elsewhere. "Published" includes most talks or presentations, any posters, any...

Thanks for creating a new thread. Took me a moment to understand. I thought I must have forgotten to have created a new thread ;)

Thanks, @Jonathan Edwards! :)

Possibly. If I look at my sister and other family members, it is degenerative. But possibly it's not ME at all.

That reminds me of a joke about psycho analysis. If you start it with the problem "During night, I pee into my bed - I want it to stop", you will come out saying "I still pee into my bed, but now I feel comfortable with it".

But are we absolutely sure there isn't a state which one could call 'slow sepsis', something where some processes are known, and maybe some are not? Something that actually is new to us? Something that doesn't lead to death, but to a slow progression of degeneration? I cannot say if it is...

I doubted these statements the moment I understodd how 'normal ranges' are obtained. If people used their common sense and brain, maybe there wouldn't be a problem. But common sense is a rarity.

I would very much like to donate on a regular basis, but I need the money to pay for food, medical care and other fixed costs, like a rent. I believe many more people with (or without ME) might be in that situation, too.

Thanks @Trish! Always a bit confusing...I should try to keep in mind who's who.

@hixxy, thanks for linking. Is this the same Australian group that was discussed on another thread (hyping their results etc.)? For me, it's difficult to say something about the quality of medical research.

Thank you, @Jonathan Edwards, for your opinion on this. One question just came into my mind: Often, medicine sounds like a 0-1-system of illnesses. Either you have a known illness - or you don't. It seems inside an illness, it is not deemed possible that there could be "in-betweens" and...

I came across this article from Jan. 2018 http://simmaronresearch.com/2018/01/chronic-fatigue-syndrome-mecfs-chronic-form-sepsis/ about David Bell's idea that ME could be something like a 'slow sepsis'. This topic seems to be a little bit older though...

That's not correct. A granted drug patent holds for 20 years. Certain safety certificates (exclusive marketing) can lead to an extension of up to 15 years. But I slightly remember the number 50 - don't know why...and I don't find a justification for that. (US and EU patent law are a bit...

I don't wear an HR monitor (but did during my sports), but I know my resting HR. And it seems my HR is a bit higher if I did too much (although I don't have PEM symptoms (yet)).

I think these are brilliant suggestions. I assume that many people with ME can't multitask (anymore; I was great at multitasking once), and speed as well as accuracy are most probably a problem, too. And it's objectively measurable.