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Here's a more detailed description of what they are selling - "Understandig Chronic Fatigue Syndrome - a bit less flashy, ut no less disturbing. https://www.health.harvard.edu/diseases-and-conditions/understanding-chronic-fatigue-syndrome But that's not in your guidelines for treatment, GET...

What....??! Is that a hoax? Some sort of social experiment...? 'how desperate are patients to buy into anything - especially with flashy marketing' That's the only way I can make sense of that page. Harvard on top, but the rest of it screams out SCAM...! The page have every marker of...

NRK (norwegian national broadcaster) coverage - norwegian - google english. Norwegian Institute of Public Health - norwegian - google english.

If it's made well, I think it could be very useful - especially for people undergoing diagnosis and new to the illness. Making some sense of your own patterns and how your body now responds. And beeing able to show this to your doctor and/or others caregivers. It wasn't until I did something...

Stubbhaug:

Yeah, guess I ment something along the line of - 'haven't got the insight into the finer details of UK academics powerplay - but even this blunt norwegian noticed that one' :-P

I'm....??! What a stupid study, it's totally meaningless. They didn't control for, among other things: " We did not allow for concurrent social circumstances as we wished to concentrate on factors that could be changed for mothers to become less external and more internal."...

Oups! Sorry about that - how about...

Trude Schei, the norwegian ME association, had a very good reply to this, about a week after. Only in the paper version unfortunately. For those reading norwegian - link to the public facebook-page 'ME-nytt' (='ME news') sharing...

Ah, didn't notice the reference - the first time I read it, and didn't realise the article had been editet, it just came of as a bit wierdly out of place sentence. See your point. Not sure if the article by by Torjesen - "Pressure grows on Lancet to review "flawed" PACE trial" - is open access...

After Bastian already pointed him to her contact information. That's rude even 'in norwegian', as tact goes.

Only the changed bits, for easier reading. The new sentences bolded:

Actually thought it was open access, as I don't pay for it or have any special access. Or so I thougt. Turns out having a norwegian IP + once clicked 'yes, I'm a health care worker' (I'm not) on a page that translates to 'the health library' I'm getting access through them. Funded by 'the...

Even with the 'US activist' still there - didn't the addition of Tullers credentials change the meaning/impact of the ending a bit? It was ment to read (I guess) as 'look what this activist fool still goes on about'. But now it's more like 'the US academic got the last word and corrects the UK...

Very much this - Bastian have an out-reach to people we normally can't get to listen. Still didn't expect anyone from "the outside" to promote this. There are som rather harsh judgement of people that usually have closed ranks. I'm sure Bastian is in for a busy week with private communications...

I don't understand their controls. Isn't both systemic lupus and systemic scleroses known to have fatigue as a symptom? This could just as well thell us that SSc patients are less likely to get an additional CFS diagnosis...

Do wonder if this might be the beginning of a series of articles - connected to the Tuller interview....? Wording like 'CFS hardcore' seems unusual, even for a journalist that belive the bps mantra? And from what is quoted here, this is a story of a patient hurt by the uncertainty patients...

This clearly isn't her first circus... ;)

I'm aware, there probably was several factors when the blog was ended in 2017, but the incident in 2015 when he suddenly over night lost access to the blog seemes to be directly linked to complainets from either/or Lancet editor/PACE-authors.