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This isn't really intimidation maybe, but still - so just posting to thread

But that's not really how Cochrane work, even if I agree with your sentiment. It's not an ordinary top-down organization, where Tovey made the decisions of how things where to be organized and who to do the review. Cochrane is, and even more so at that time, a bottom-up organization, edit: with...

Yeah.. But, on the other hand, I'm not sure they would have known? If they where recruited by the protocol authors, they where Oxford and Kings College? Unless Larun herself mentioned it, how could they know? I'm not sure if it got any publicity at the time, but if it did, would have only been...

Hm, hadn't thought about that? She and Brurberg isn't on the earlier versions, they seem to have taken over in 2015? For Larun, my guess it's her being a physiotherapist, that made GET/exercice theraphy seem the obvious answer. She have written articles about ME, both diagnostic and treatments...

You have no idea how hard it's been to get any meaningful debate about LP here... Or you might, reading my last reply :p The article about Stubhaugs study for instance, where Tronstad and Sommerfelt also shared their opinion about it? Noticed how careful they where to point out that some people...

Yeah, that's the big question, isn't it? I've mentioned before, that we have a 'LP-problem' here. It's not everyone - obvious, as there is also very good research going on - but there is a rather deep divide between some parts of the 'health services'. The norwegian ME-association was...

I'm guessing Skogli itself isn't the main problem with this program - look at the co-hosts. Among them 'the national competence service' :wtf:

'Look what those pesky ME-militants did now...' :rolleyes: :cautious: *sigh* Wanna bet who first tries to blame this on pwME..?

Not read the whole thing yet, but this is one of the points she make in the complaint letter:

If there should be any point in comparing illness perceptions in ME kids with other ill kids - then they should be compared with other not well understood illnesses, with no treatments options etc. This isn't comparing the kids perceptions - but how the lived experience with a more well-known...

So perceived consequences, timeline, personal control, treatment control, understanding dimensions of illness perceptions were predicted by health condition For an illness where there isn't any real treatments, the illness by nature fluctuates and is nearly impossible to predict and how...

On the same note, a link to the letter in question. https://www.parliament.uk/documents/commons-committees/science-technology/Correspondence/190129-Sir-Jonathan-Montgomery-Health-Research-Authority-to-Chair-re-PACE-trial.pdf Also - when looking for this I first went to the SMC, their 'expert'...

Quote from Sharpe's letter: That's telling. He sent complaints about at least two articles, from 2017 and 2016, the very same day the HRA-letter was published. So he either/or knew beforehand what their conclusions where (and could prepare), and/or have kept a list of articles at hand that...

Huh...? That's - bold...? Did he think the recivers of the requests wouldn't read the HRA-report? Did he not read it himself.....? :confused:

Welcome to the forum :)

The same thing is happening here, with the understanding of what GET is - sort of morphing into something else. There's been a few heated discussions in patients groups, where people that have had 'GET' sessions with a physio, don't understand why patients organizations etc are so against it...

Ad. caucasian women having higher risk - Jason et al found contrary data. From the paper "CFS: A Review of Epidemiology and Natural History Studies" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3021257/

Read again, and agree with others - the article is pretty good. And so much better and balanced then we're used to from forskning.no, they've seem to have got it now. It's often been Wyller and Helland, with the ME association as the sole dissenting voice. Sommerfelt and Trondstad are doing a...

Oh, no that was an additional stray thought - and agree. I ment the bit about "gradually increasing exercise levels." Sorry, I see my post was less than clear. Edit: But also for CBT - wasn't there a US official report finding no/very little support for it, and GET?

About the other e-book - "Boosting your energy": https://www.health.harvard.edu/staying-healthy/boosting-your-energy From the 'exerpt' - a chapter about "Energy and exercise": Not for ME-people.... :-/ Doing more takes away my sleep first of all.